Hello. I'm Carrie. JUST joined the group about three minutes ago. I'm twenty-six and have had fibromyalgia for as long as I can remember. Started having symptoms when I was ten to thirteen years old. I don't remember not being in pain.

I'm just in a rather blue place of late (in part due to winter)... Hoping humor and people who "get it" could be helpful.

Take care all!

I am so happy to see this group growing. I hope you all find it as pleasant, informative and fun as I do. It's enough like family I often have to refrain from asking someone to pass the pasta or should it be Chinese or diner tonight?

I'm also from the frozen state of NY though it is supposed to hit 40 this weekend. Heat wave! I have hip and back problems along with sporadic migraines. I am not at my best these days.

Welcome to all the newbies, I'm glad to see our group is growing and I'm so thankful to be a part of it.

OK, I have to say it.

Every time I read the title of this post, it makes me think of that movie..

"I see dead people"

I know, I am weird. Hope I don't get myself tossed out of here. I am harmless, really. Just a little whacky!

Welcome!
Hey Cinnamonheart... with your diagnosis of "interstitial cystitis", you said that you have to eat a "special diet" to help with the pain...what exactly are you talking about? I have terrible bladder problems related to my diagnosis of autonomic small fiber neuropathy (I have neuropathy in my bladder & many other internal organs/operating systems within my body). It causes horrific pain in the form of spasms & chronic infections that easily/quickly starts traveling up those ureters into my kidneys in a blink of my eye! I take Daily antibiotics (Macrobid) for right now, but I still get an infection about every 3-8 weeks...SUCKS!! I would love to hear about what type of foods you eat & whatever other information you have on relief. Thanks & once again WELCOME...LOL

-Jennifer

Anyone please chime in if they have any information that might be helpful. I know about cranberries, but I am excited to learn more.

@ cinnamonheart,

You got it. Eye catcher!

David.

Jen, I'll message you with the info!

Another newbie here also from the northeast,lol...thank's for the welcome. I have been searching a diagnosis for about two months as I started going numb and tingleing last year. One brain and neck MRI later I have found out that I have demyelinating on the brain( but no MS) and do have a bulging C-5 disc. I am starting physical therapy next week and have an a consultation set up w/a neurosurgeon in March. We are not sure what is going on with my brain and my neuro thinks two seperate issues for sure but one diagnoisis at a time, right? I am on high dose of gabapentin for the numbness and am still in much of a numb state and am always in pain.I'm thankful for groups like this where there are others that understand! Have a good one, Tami

Welcome newbies! I feel like I know most of you already, but hey you learn something new every day huh? We have a great group here and I'm happy to see it growing every day. We are a helpful bunch, but also try to use humor (though at times a little warped) to get us through our days.
Holler if you have any questions or you just want to talk.
Toni

im my own opinion its not worth getting a fibro dx unless they have found everything else wrong with you. i got fibro and my first dx and and i've known that something else was wrong with me besides that but once you get that dx doctors seem to not want to look any furthter. Same with chronic fatigue syndrome.
I'm just now getting my other dx'es after being presistant for 2 years.

Also most docs don't know how to treat fibro so its frustrating. If you have anything else get that sorted out and treated and if you think you still have fibro then i would preceed to figure out if its fibro causing more pain.

thats just my expsperience, i hate having a fibro dx! oh i also have a PTSD sx wich dosn't help.

i've gone to the ER a few times for chest pain and they told me it was anxiety or fibro but it turneds out my inflamatory arthritis was giving me plurisy and costocondritis. It is a systematic disease after all

Thanks, Rayfoof. You bring up valid points.

Rayroof, that info was really helpful, thank you! I never really thought of that, but it makes sense..that if fibro is your primary diagnosis, the docs don't want to go any further to look for other issues. Doesn't it just suck that we have to keep on them, just to get ourselves straightened out when we know we have an issue?

In this day and age of preventative healthcare, you would think that patients who are proactive with their care would be taken a little more seriously. I hate that you practically have to beg a doctor to find out what's wrong with you.
I've walked around with a kiwi sized lump in my chest for nearly a year. It's painful, it makes me short of breath, yet when they did the ultrasound, they saw "nothing"...twice...ok, well, you can see it and feel it, so it has to be there, right? NOPE. I was told it is likely "just part of my anatomy". OK then. I cannot get a doctor to order further testing, so I guess I'l just have to live with it.

Didn't mean to get off on a tangent, sorry. It just bothers me that health care has become so much a business that they sometimes forget they are dealing with real, fragile, painful lives here.

Rant over, sorry.