Support and Chronic Pain Community Group
Welcome! This room is for CP/IP survivors. This room promotes fun, family, support and compassion. No Drug Seeking Posts or Promoting of such activities are allowed here. Please, No "F" Bomb--keep swearing to a bare minimum. No posts that are "fighting" with another person/group on this board or another.
I was doing so well for a while I guess I forgot that flares can still happen. This week has been horrid. I babysat my grandson alot last week which could have contributed to this flare and also Sunday night I fell asleep without taking my pills. I woke Monday morning in withdrawals from the Oxycontin and who knows what else... felt like an awful flu and I had to go to physio. I made it but it wasn't easy.
I've just had way too much pain this week for the amount of meds I'm on. I talked to my PT about it today and he was sympathetic but didn't have any suggestions. These things happen. Its been so bad that at times I can barely walk. Every step kills me when I put weight on my left leg and I have to hold on to whatever is around for support. I thought I was past this kind of pain.
Only a bit over 3 weeks til I'm supposed to start my gradual return to work. After a week like this one I wonder if I'll be able to do it at all. I don't feel I'm ready and my boyfriend keeps saying 'you're not ready' but what can I do - insurance is pushing. I keep telling bf that if I at least make the attempt it will show insurance that I tried, I did everything I was asked - what more can they ask. Friday my PT is doing another full assessment so he can report to insurance how I am doing with the intense core strengthening that I've been on the last few weeks. I know I haven't improved any as far as physical ability and pain levels.
My family doctor will be leaving her practice on Dec. 19th... bad timing for me but nothing I can do about it. She provided me with a copy of my treatment plan from PM that includes all my prescriptions as well as a full medical history and assessment that PM did on me when I started there. Its about 15 pages and details everything - I had no idea this document even existed but it was quite interesting to read. I learned things that were never told to me such as the fact that I apparently have Raynaud's Phenomenom, lumbar spondylosis and, in his opinion, no longer have fibromyalgia. Its all a bit confusing but she suggested I take the papers and bring them with me if I have to go to a clinic or ER before her replacement comes in July. She did write me 3 months of refills on my Oxycontin and percocet and 6 months of everything else. Bf's doctor said he would fill in for me until her replacement starts. Also PM said I can call them if I need anything so I'm covered even though I feel like I"m hanging.
So I'm laying in bed unable to sleep with a horrible pinching pain in my back and down my buttocks. I'm getting very tired so hopefully sleep will come. Good night all, hope you all sleep well and have a great day tomorrow. Hugs all,
Lisa
I've just had way too much pain this week for the amount of meds I'm on. I talked to my PT about it today and he was sympathetic but didn't have any suggestions. These things happen. Its been so bad that at times I can barely walk. Every step kills me when I put weight on my left leg and I have to hold on to whatever is around for support. I thought I was past this kind of pain.
Only a bit over 3 weeks til I'm supposed to start my gradual return to work. After a week like this one I wonder if I'll be able to do it at all. I don't feel I'm ready and my boyfriend keeps saying 'you're not ready' but what can I do - insurance is pushing. I keep telling bf that if I at least make the attempt it will show insurance that I tried, I did everything I was asked - what more can they ask. Friday my PT is doing another full assessment so he can report to insurance how I am doing with the intense core strengthening that I've been on the last few weeks. I know I haven't improved any as far as physical ability and pain levels.
My family doctor will be leaving her practice on Dec. 19th... bad timing for me but nothing I can do about it. She provided me with a copy of my treatment plan from PM that includes all my prescriptions as well as a full medical history and assessment that PM did on me when I started there. Its about 15 pages and details everything - I had no idea this document even existed but it was quite interesting to read. I learned things that were never told to me such as the fact that I apparently have Raynaud's Phenomenom, lumbar spondylosis and, in his opinion, no longer have fibromyalgia. Its all a bit confusing but she suggested I take the papers and bring them with me if I have to go to a clinic or ER before her replacement comes in July. She did write me 3 months of refills on my Oxycontin and percocet and 6 months of everything else. Bf's doctor said he would fill in for me until her replacement starts. Also PM said I can call them if I need anything so I'm covered even though I feel like I"m hanging.
So I'm laying in bed unable to sleep with a horrible pinching pain in my back and down my buttocks. I'm getting very tired so hopefully sleep will come. Good night all, hope you all sleep well and have a great day tomorrow. Hugs all,
Lisa
One word of caution if you are not ready do not go back to work it will not be easy to go back out once you go back and will cause lots of problems if you are not ready file for an extension now and get a doctor to sign off hell with the insurance for work mans comp they want you back weather you are ready or not do not let them dictate to you when you are ready you tell them and take as long as you can without getting fired.
How long have you been out and what for if you dont mind me asking? I was a manager for a Restaurant and had to deal with workmans comp for my employees and then eventually me and they will send you return to work dates and you just have to tell them no your doctor wants you out for a bit longer. They have to send out these letters it is sort of automatic and it is up to you to counter that if you need to. The only key is that you will eventually be back you can not tell them you are out permanently you just need to keep pushing the date back till it exhaust. But only take what you need as it will hurt your credibility with your company you work with if you milk it to long. But going back to early works for nobody as you will not be 100% and they will be paying you for substandard work. Your company has insurance and pays work mans comp no matter what so they are loosing no money if you are out but will loose money if you go back not ready.
Work mans comp who is your jobs insurance is the one loosing money and they have no investment in you so they just want you back this will only hurt you and your company if you go to soon.
I hope that your flare will level out and, provide you an opportunity for some real rest.
HUGS
As Manny said W/C is a "tricky wicket" and to go back before you are ready may not be to your best interest. For some reason I thought you were on Disability insurance and not W/C. In my mind I believe disability insurance pays for a lifetime if you are unable to perform the job you were doing. There is short
term and long term.
No answers just want you to know I am keeping you in my thoughts and wishing you healing from the flare.
hippy
I'm glad you have back up doctors, that isn't always an easy thing to find.
Sending you hope and prayers,
Toni
The doctor mess is the worst part right now. Its just really bad timing. She has a doctor taking over her practice so I will have another family doctor but she's not arriving until July so I have 6 months to get through. I will call the pain clinic on Monday and get back in there so I have someone following me that knows what is going on. I'm not sure if my PM doc can/will take care of paperwork and doctor's notes - that was always my pcp. If he won't I will make an appointment to see my bf's doctor and talk it over with him. I know I'm not stuck but I hate to have to explain everything to someone new and hope he has the same philosophy as my old doc (or better).
As far as my pain it is easing up a bit now. I think missing my pills last weekend set it off. I've had a busy week but trying to take it easy at the same time. Physio has been tough and I've had to cut back on some things but I'm still pushing through it. Only three more weeks. My doctor said that unless I get worse before then I should make the attempt to go back but let them know immediately if I am unable to keep it up. I understand that if I even get to half time they will expect me to work part time but my employer won't allow it. Its kind of a messy situation, I will be glad when I'm past it either way. I'd love to be able to work full time without pain, that would be heaven, but I know I can't right now. Insurance told me it is basically up to my physiotherapist to decide when I'm ready so I'm glad I have a good relationship with him. Having to cut back this week sent a message for sure. He's talking a couple more months before trying the gradual return, we'll discuss it more this week.
Take care everyone, hope you are having a nice holiday, Hugs all around
Lisa
I can relate a bit because i was diagnosed with fibro for a few years before i was told that i have raynauds in my hands and feet and granulomas in my spine and inflamatory arthritis from my sarcoidosis. Now about half my docs say i still have fibro and about have say i don't. I honestly think i don't and that the sarcoid is responsitible for my pain. I think with being able to tell if you still have fibro or not if you already have a different primary diagnosis that fibro go with your gut instinct cause i don't think the doctors can really tell us. Like if your primary condition goes into remission or your back surgery has been healed for a few years yet you still have widespread muscle and joint pain and skin and noise sensitivieties, then you probably have fibro.
oh i just red your 2nd entry!!! i'm glad your pain is easing up!!! when i forget to take my long acting med i feel like crap for a good 3 or 4 days!
alot of us here have had to stop working, i'm glad you were able to get on disability cause alot of us have been denied and its a long ugly process.
i hope your appoitments wind down and you pain eases soon.
i would do anything to be able to work full time too. i feel you there!!! you in good hands with alot of people here that understand.
big hugs