Stillbirth Support Group
This community is dedicated to those who have been impacted by a stillbirth. A stillbirth occurs when a fetus which has died in the uterus, during labor, or during delivery exits a woman's body. For help and support, share your experiences and learn how others coped. Don't forget that you are not alone.
I haven't told my story here yet. I lost my daughter Avery at 23 weeks gestation. I was told an immune disorder - lupus - caused an maternal floor infarction. We now know my daughter thrived until the five month mark when she stopped getting the oxygen and nutrients she needed to continue to grow. It's been triple-devastating because I didn't know I had lupus and her death could have been prevented had I known. Also, since delivering my daughter I've been on all kinds of medications attempting to calm the flare up that took my child's life. I'm doing this alone as I found out early in my pregnancy that Avery's dad had a girlfriend he'd been with for almost 2 years. He was desperately trying to contain the truth and that meant he had to deny everything - me and the pregnancy. We had very little contact.
All this to say, I know I don't have the best of luck as evidence of all that's just happened to me, but I just don't believe the statistics they put out there. I think women who go thru this are encouraged to stay quiet about it. Nobody wants to talk about dead babies and there is a shame attached to a woman telling this story because than it's assumed you are some how 'less than' because you weren't able to carry your child to term. I was in deep conversation just a week ago with a woman (a friend of a friend) and told her what happened to me. She told me I should keep what happened to my daughter "to myself because somebody might use it against me." I can't tell you how angry that made me.
My point - personally I think the numbers are much higher. I just can't prove it.
I really struggle with anger about it, because it seems like something that could be monitored somehow. Maybe not easily, but wouldn't it be worth the extra time and money to save all those lives? :(
The last time that I seen Malaysia alive on an ultrasound I was just 19 weeks pregnant. So much could have happened to her from that point on that the doctors would not have known about because they did not do a third trimester ultrasound. When I was 38.5 weeks pregnant and they pulled her picture up on the ultrasound and she was not moving it was the worst moment of my life. For weeks I kept comparing the picture of her at 19 weeks doing full on rolls to the picture of her at 38.5 weeks when she was completely still. It haunted me.
ALL pregnancies should be treated as high risk. It is not fair that so many babies are born still every year and many mothers are not considered high risk until they lose a baby. It is not fair that people with so called "normal" pregnancies have to lose a life in order to be monitored more closely in their next pregnancy. What is wrong with doctors and the health care industry? Why is it not emphasized that EVERY life should be treated carefully?