I was sent to the sleep center because I was tired all the time. Even though I have fibromyalgia and lupus, I should have at least some energy. Sure enough, I have sleep apnea. The therapist told me that very often goes with fibromyalgia for some reason.

Do you have a cpap yet? That's what they do to treat sleep apnea, get you one of those. They really help. The mask can be a little awkward at first, but you get used to it.

i am newly diagnosed too. have probably had it for 20 years, maybe my whole life. btw the reason it is linked to fibromyalgia is that we dont get the 'phase 4 deep sleep' that comes on after 3-4 hours asleep. that then leads to changes in the pain processing centre of the brain/spinal cord (CNS). i am SO looking forward to getting decent sleep.

I was just Dx as well ... Have the appt. to go to therapist on Tuesday to get 'fitted' for the CPAP machine.

I'm here to learn as much as I can about the disorder.

Thanks.

wow, there are 3 of us here diagnosed/getting CPAP this week(ish). that's cool... kind of like new parents who go through their birthing classes together, lol

hi all, im stil waiting to get my machine..

The best advice I can give is if one mask isn't right for you then try another. There is more than one type of mask and as long as your sleep doc says it's ok then try as many masks as necessary to find the right one for you. My sleep doc had to ok the swift for me as opposed to a full face mask.

Me too. Had my "settings" study on Sat. Horrible. Fought that pressure all night. Should get my gear next week. I had hoped to use the nasal mask but I did so poorly with it, prob. will have to use the mask.

HI. ASK FOR A C-FLEX MACHINE IF YOU CAN GET ONE. THIS HELPS SO MUCH. WHEN YOU BREATH OUT THE AIR CUTS DOWN SO YOU ARE NOT FIGHTING THE AIR ALL THE TIME. IT HELPS WONDERS IT MADE SUCH A BIG DIFFERANCE FOR ME. NOT GIVING UP ON THE CPAP

I just got diagnosed also. I also have fibro and am getting my machine around the 26th.

i am using an auto-CPAP machine that constantly adjusts to the pressure i need. it records it over a week then the tech looks at the results to find out what pressure i will have. i will then get a normal CPAP machine, i think, and the auto ones are very expensive. good for the initial setting though.

the bi-PAP machines that have a lower pressure for breathing out sound good, but so far i haven't needed one. probably because i am on auto. whatever works, do it i say. it takes a bit of getting used to it but is worth it, so keep trying everyone... all the best.

i certainly sympathise... what are the reasons why people don't tolerate it? the mask? dry, cold air? alot of problems can be solved (i know not all though)

mine is so quiet - the machine is silent and the air flowing through the mask is kinda soothing. probably i tolerate it well because i was so desperate to get relief - severe apnea of longstanding with many disabling complications. so my tolerance level is quite high.

jaimelc, i just read your post again and i see you asked for info on sleep apnea. have a look at this website:

www.resmed.com

it has good summary info on sleep apnea and treatment options. resmed are the makers of the machine i'm using.

i got CPAP machine and on 4th night tonight, its a slow process, but had on for 6 hours satirday night.. im SLOWLY getting used to it

i had a very tired day today, it was like pre CPAP =( maybe i had alot of mouth leakage last night... i wont know until i send the data card back to the lab. i sure hope my mouth is staying shut while i sleep.

I just got the call today saying that my sleep dr has left the prescription for my machine. I am looking for a place to purchase a machine due to the fact that we no longer have insurance I need something as cheap as possible and I know that CPAP and cheap do not really go together but I thought someone might have an idea.
Thanks
Tina'