I deal with hand exzema constantly and am usually using either steroid cream or this wonderful cream called CeraVe. I think I get some in my groin and on my head also, but it is definitely the worst on my hands and it gets worse if I get stressed.

sjs people have dryer, thinner skin and, therefore, more sensitive to skin issues.

Hi. I'm one of those whose skin got dryer and thinner since getting DX'd. I also have problems with a rash that breaks out like spider bites and then they take a very long time to heal. I also have skin that burns and itches. For the spider type rash, the best thing I've found is Neosporon. Also, because my skin is thin, when I scratch my skin due to the itching, it will make like blood spots on my skin. My skin is just more sensitive since getting SJS. We do have more sensitive skin because I never used to have these problems.
Have a nice day.

Thanks for your replies-I see my rheumy gain next week and also scheduled an appt with a dermatologist.

I have the opposite - Sjorgren's has caused severe dry skin for me. The best product I've found (which is really working well) is Excipial U Lipolotio 4%. For my hands (the crack all the time) I have found that a combination of 100% aloe followed by a thick hand cream (I use a couple of products) is the best solution. It's not magic and I have to use cream throughout the day but it works.

I also discovered that if we rub our skin as in washing it will cause a rash and or bumps. The hair follicles get irritated when rubbed by washcloth or even scratching. I try to be gentle with all my skin now. Lots of lotions.organic and plant based. If my skin cracks open I use an antibiotic cream.

My skin gets dry and I have to use lotion several times a day. It is also extremely sensitive and I have to use caution with soaps, especially laundry soap, and lotions. Certain fabrics also make me rash out. Meds can cause reactions too. I take L-Lysine twice daily and it really helps, then when I do get a rash or extremely dry skin I use hydro-cortisone cream as often as needed.

Janda~
Sorry for the late reply. Just saw your post and thought I would reply. I started having these red and painful bumps, usually in my arm pits, but sometimes on my face, breasts, belly, and thighs. Sometimes they leak a fluid and sometimes they just go away on their own without opening. I saw several doctors when it all first started. An ER doc said it was folliculitis and put me on antibiotics. Another said it was acne and told me to switch deoderant. Finally, a doctor was able to tell me that what I actually have is called hidradenitis suppurtiva. This is from apocrine (or sweat glands) becomming inflammed and infected. People with SJS are more likely to have this.

See, same here. My hair follicles get irritated easily.rubbing and soapsan cause it. Mine is mostly on my legs and arms where my clothes rub. I use heavy duty creams like body butter. and Roc Regenerist.also Olay etc.... if bad I rub on acne medication or switch to antibiotics. Irriating both way,physically and emotionally. I also have to check if there is a hair in the follicle and if so it helps if I tweeze it out Joanne

Hi, everyone! I'm new here...
I have very dry skin, especially on my head. I have found that taking flax seed oil and fish oil, 4000mg ea, has helped.

Sylvia49

Welcome Sylvia 49!
I had a skin check as I live in Australia & the Dr kept saying how good my skin was especialy as I am over 60 & live in Australia. He kept on how moisturized it was. I thought about it later as I do look after my skin but can't reach my back. My hair dresser said my hair was in better condition so I am sure it is all the flaxseed, fish oil & krill oil I take. I have started taking a hair, nail & skin supplement, so maybe they all help. My nails are still very flakey though.