Sensory Integration Disorder Support Group
Sensory Integration Disorder is a neurological disorder causing difficulties with processing information from the five classic senses, the sense of movement, and/or the positional sense. Sensory integration disorders vary between individuals in their characteristics and intensity.
I just wanted to post this and see if I can maybe find anyone else like me or anyone else's input or similar experiences with symptoms or disorders... I was previously misdiagnosed with Meniere's Disease. I went through many treatments and after a while of nothing working for me, I went on the search for a new doctor that could help me. After more testing I was diagnosed with hypersensitivity to vestibular input which is a sensory input processing disorder. There is very little research about this disorder in relation to adults as it mostly diagnosed in children. The symptoms are the same as Meniere's Disease but I am now more closely grouped with Migraine patients as SID is a nerve or brain disorder instead of an actual problem within the ear.
On top of the symptoms that already existed, after receiving injections of gentamicin into my inner ear I now have nerve and tissue damage which causes chronic tinnitus, vertigo, balance issues, nausea, hearing loss, and tissue damage in my throat. Those extra symptoms are all the time and heightened during episodes relating to SID or during other cases such as illness as basic as the common cold.
Any thoughts on this topic such as suggestions that you have tried for helping any of these symptoms, a diagnosis with these symptoms that you have received or heard of, or any personal experiences.
Thank you!
On top of the symptoms that already existed, after receiving injections of gentamicin into my inner ear I now have nerve and tissue damage which causes chronic tinnitus, vertigo, balance issues, nausea, hearing loss, and tissue damage in my throat. Those extra symptoms are all the time and heightened during episodes relating to SID or during other cases such as illness as basic as the common cold.
Any thoughts on this topic such as suggestions that you have tried for helping any of these symptoms, a diagnosis with these symptoms that you have received or heard of, or any personal experiences.
Thank you!
I really take care of myself when people around me have a virus because, like you, it really affects me. Other than that I allow myself to explore the limits of what I can tolerate without overdoing it. I find that mild exposure to things builds my tolerance and coping mechanisms. Without that exposure I start getting overly sensitive again.
I'm not sure if you have "crossed wires" like I do; dampening other senses can help me process another. Wearing hearing protection and sunglasses can help me with vestibular issues, so that my brain isn't overloaded. I'm totally that person with earplugs and sunglasses on.
I wish they'd diagnosed you properly the first time so you wouldn't have had those inner ear injections :( Mine has a silver lining - I can detect earthquakes before they hit! I get so sick though, it's enough to make me want to move to where there are no earthquakes.
Oh, I am new to the group