Secondary Progressives Community Group

For those of us who are beyond Relapse/Remitting. Dedicated to supporting others that are secondary progressive.

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Brain & Nervous System
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Feeling good and in pain at same time

oleblue
oleblue
I was just wondering if this is a natural thing that is going on. I have been feeling really good this week, but at the same time I'm in considerable pain. I am pretty determined not to let the pain ruin the way I have been feeling. I have this sick feeling that maybe I have spinal lesions as I have read that they cause back and leg pain, But on the other hand I have been having bowel problems and wonder if the back pain is from straining while trying to go. This disease is just so confusing. Maybe someone who has spinal lesions can shed some light on the subject for me. I would so greatfull if you could.
Dave
deleted_user
deleted_user
My spinal lesions are the biggest part of my MS. My nerve pain goes from my lower back and then down the insides of both legs. It then affects the sciatic nerve as well. My right leg is progressively losing strength and movement. This too causes bowel problems for me. I have trouble sitting for any length of time...I mean 1 hour is the max and then I start feeling the nerve pain. Even watching tv poses problems. I am on Gabapentin 900mg 4x a day for the nerve pain which helps. I can tell if I miss a dose. I have to get up and move around to lesson the nerve pain. My neuro explained to me that all of this is due to nerve damage. Even though I may not have new lesions there is still damage continuing inside. The lesions are simply the scar tissue that are visible on an MRI...damage to the nerves can continue. And when the nerves die that cannot be reversed.
MS really is confusing that's for sure. There are so many things I cannot do now that I could do last year. I have restricted my driving considerably because of not being able to move my right foot from the accelorator (sp?). When we go somewhere I get into the back seat of the van and lay down in order to take the pressure off the nerves. I now have a cane, rolling walker, scooter..and use them depending on how I am doing.
In spite of the fact that my mobility is greatly affected I like to focus on the things that I can do. I am on my computer everyday. I do genealogy, read, have friends stop by and we talk about a lot of other things besides my MS. I go to MS meetings and events.
I don't know if this helps..but your post rang a bell with me.
Kathy