Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
Hey guys, It finally happened. My spouse finally came to terms with me about my condition and how it is affecting her. I don't think she really wants to leave me, but the time seems to be drawing near. Things were fine until I found out that I have the disease. We mow yards together and I do not handle being in the sun, especially when it is 104 degrees outside. She has been picking up the slack and mowing by her self quite a bit, but on the way home from mowing this evening, she finally came clean and told me that she does not know how much more she can handle. she almost took our only vehicle and left when we got home. She is angry at me for being sick, she wants me to be the bred winner, while she stays home and takes care of the baby. We only have sex about once every three months( which is horrible to say the least). I don't know what to do. I love her with all of my heart. I have talked to her about going through counseling and I want us both to go through sex counseling as well. We got married almost 7 years ago, and she refuses to this day to have oral sex with me. I am experienced and she is not willing to try anything different except missionary FOR 7 YEARS! Apparently she is not leaving tonight but she blames it on me. She says that I don't like her??? It is just an excuse to put it all on me. Do you guys have any suggestions? I never thought my wife would leave me because I got sick.
Have you made any lifestyle changes as far as diet and exercise? My sarc is in my eyes and maintaining an anti inflammatory diet and regular exercise has helped. I'm down to 1mg of prednisone!
As far as sex, there could be some resentment building up making it hard to get in the mood. Women are turned on when we see our men doing things around the house. You have a valid reason for doing less which mean's she has to do more. She's probably tired. I would suggest trying to find ways to give her a break.
Chronic Disease can put a huge stress on a relationship. I think you are moving in the right direction by encouraging counseling. I would make sure that your wife is well educated about Sarc...maybe lead her to some easy to read websites, so she understands the toll it takes on a person, and let her know you understand the toll it takes on her. She may need a support group of her own as well.
That said, marriage counseling is a great first step.