Well wishes to everyone.

Sonny, I have a lesion on the skin of my right eyelid. I haven't seen a dermatologist yet, but after Googling pictures of granulomas, my lesion looks very similar. I think it's going away now though. Have had it for three or four months.

Yours could very well be a Sarcoid granuloma also. Are you going to have it checked out?

I've been having other strange symptoms.Today while snacking on popcorn, my jaws and throat became very weak and tired. I was so
afraid. Will be seeing my PCP on Wednesday and I will surely mention this.

Have a good evening All and blessings to you.

Hi kpj,

I am sorry to hear of you granuloma on the eyelid. That must be uncomfortable. Mine doesn't look like a typical skin lesion that I've had in the past, this time it is underneath the skin. I think I am going to have to have it checked out b/c it doesn't seem to be going anywhere and a new one popped up the other day. I was hoping to avoid adding a new specialist to my list of Dr's lol!

When you had the problem with your jaw and throat, did you have trouble swallowing at all?

Please keep us posted on how it went at your PCP appt.

All the best,
Sonny

Sonny, I am sorry to hear that you have this going on. I am newly diagnosised but have had this for a long time apparently. I have red bumps show up that are like pimples that are there for awhile.

Hi Sunny Brook,

Thanks for your response!

Those little red bumps sound pretty typical of a cutaneous (skin) outbreak of Sarcoidosis. The only way to be sure is to have your treating physician or a Dermatologist take a biopsy or scraping so they can be sent to a lab for confirmation. These outbreaks can last quite some time. Some Dr's prescribe RX meds like Prednisone to help with the flare.

I hope you feel better soon, hang in there!
Sonny

Hey Sonny, haven't been on in a while. I have the same thing on the palm of my right hand. showed up about six months ago and i have a feeling that's what it is as well. I'm also having some sores show up on my legs and arms that I thought at first were just ingrown hairs, but now I'm beginning to wander. Also, my last x-ray showed significant improvement, but some days I can only work for 2 minutes before losing my breath and hyperventilating. Does anyone know that this may continue even if my sarc goes into remission? I was exhausted trying to just do a few things outside, and I could not catch my breath to the point of vomiting and almost passing out. I didn't sleep well last night, and I hope that is why I am so fatigued today. Anyway , I hope everyone else has been doing better than me. I had a fun vacation in Colorado until the third day. I got really sick from staying up in the mountains in Winter Park. I couldn't get out of bed for two days I was having so much trouble breathing. I was sure glad to be back in Texas. Thanks guys!

Hey Daniel!

The sores that look like ingrown hairs sound typical of cutaneous sarc outbreak. You can google "Sarcoidosis Skin Granulomas" and you should be able to get enough pictures to compare and contrast with plenty of images online. I'm not sure what you were referring to on the palm of your hand-the sores, or bumps under the skin like what I have?

Regarding the fatigue, my theory (and I'm no Dr. so take it with a grain of salt!) is that because Sarc is a systemic immune disorder, that takes a toll on so many organs, leaving behind much scarring and damage on vital organs such as the lungs, that even in remission the body has to work much harder to perform after sarc has attacked it. So even in remission, your lungs have scarring, which makes it harder for your lungs to function, which just plain tires you out. Again, that's just my theory : ) You may find you need to get tested for asthma, if breathing becomes a serious issue. Inhalers can make a world of difference if you have developed asthma as a result of Sarc damage.

All the best,
Sonny

Hey guys, I went to the Doctor yesterday and he is sending me to a dermatologist. After looking at pictures, I'm pretty convinced that the sarc is attacking my skin now.My Pulmonalogist didn't want to say for sure. I asked him why I'm having such a hard time breathing if my x-rays are showing improvement. Are my lungs damaged now and scarred? He told me not to worry about that right now. Ha, are you kidding me? He was not happy about my trip to Colorado, and told me that my career is one of the worst things I could be doing in my condition, as if I hadn't already realized that. He raised my prednisone dose from 1-10 mg a day to 6 for the next 2, 4 for the next 4 and then 2 for the duration of who knows when. But my lungs supposedly look good??? He did give me an inhaler though and sent me for a cat scan today of my lungs and my brain which was surprising because he said nothing about checking out my head. Maybe he just wants to verify that I have a brain after going to Colorado with highly active Sarcoidosis... Man that was rough and all of these new symptoms showed up on vacation and haven't gotten any better but worst since. Lesson learned, my wife has basically done all of the yard services since we got back. Most days I don't have the energy to get off the couch. It's hard not to feel guilty, but I thank God every day for my wife being so understanding. My diet has not been so great here lately either since we went on vacation and are playing catch up on getting our finances back in order. Not to mention how dry it has been in DFW since May. Customers don't want to pay me to mow their dirt. We did get some rain last week and we are finally making some paychecks again but the off season is coming and that is when money really gets tight. God somehow provides. Hope all is well, and take everything one day at a time!

hey there, i can for sure relate to what your are experiencing- I have a growth on my shoulder under my skin that is about half the sixe of a golf ball. I also have lesions in various parts of my body, whenever i get a cut it turns into a lesion. Very frustrating and painful at times.

It is frustrating spawnac!
Have you been to a Dr yet about the growths/lesions that you have?

I have various lumps/growths under the skin on my arm and both legs. I don't know if they are sarcoidosis or not? I guess I better mention those to my doctor as well. What a crazy plethora of symptoms this disease creates! :(

This disease is very frustrating & crazy! They know so little, it's really important to be your best advocate. I am grateful to have had a firm diagnosis and a Dr who truly specialized in the disease. I thought I was full remission for the most part...stage 2 pulmonary, 15 months of prednisone...but I beat it. Now, 16 years later it's back and attacking my skin. Fatigue, pain are still present, but I can breathe. If anyone want to chat, needs support, feel free to contact me. I'm wrapping my head around doing this again but I go in well armed, and I'm happy to lend a hand to anyone else dealing with this stupid silly disease.

I had growth all over my thighs and arm the doctor cut 2 of them out from my arm and had them tested and determine that I had sarcoidosis in 2006.