Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

The IV meds like Orencia and Actemra are no co-pay cause they are considered treatment, not medication. I'm on a TIGHT budget. I live on $3K/month.
Side effects are very similar: increased risk of infection yada yada. And I pay a $15.50 co-pay every 28 days to have the infusion in my doc's office. Plus gas to go 26 miles RT every 28 days at nearly $3 a gallon.
This is why I get IVs and not at home injections or pills. I also have Medicare.
I'm starting Zeljanx TODAY! Doc called. They have samples for me until my RX gets approved and filled and sent to me...
Did you get my msg?
i'm picking them up from doc's office later today
Here's to hoping the Xeljanz works like Orencia did for you!
"only drug I have not tried yet is an infused drug." Is that Rituxan? I've got pathetic veins, but the infusion nurses I've dealt with are great, plus I've learned some good tricks to help make veins pop a little. Rituxan takes 4 infusions a year, but you can get ports installed, to take the "stick" out of play. I know one RA person with a port, but lots of cancer patients.
Of course, I don't even know if that's the drug you're talking about, but it usually seems to be last on everyone's list. I've had good luck with Rituxan for several years and know a couple of people who have been on it for 10+ years. I'm not trying to sell you on that, and I'm with you on not retrying drugs, but I was lucky to find a good one after relatively few others and only one biologic.
Good luck to you and everyone else. RA is totally fucked.