Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Seemingly when I'm at my worst my whole support system fails! As recently for what ever reasons I was off the Orencia funny how the insurance company can control there bottom line and your just a number did anyone call and ask how the meds were working and would it be a problem switching to self injection from I ? HELL NO just a message and phone tag"there's a change in your meds" show up for IV treatment, oh they canceled all your appts! So I get pissed and despite my own health stop everything for 2 mos. But oh who pays for that surely not them. So at my worst in a cpl years got my meds now the fight with my body to get back to functional slowly sure to run out of pain meds before that fight is over and as there sure to think I'm some drug crazed Vicodin addict I'll have to go with out. My support system so easily fails due to lack understanding or tiresome family members after years of this fight. Funnlacky when they Drs. And such how much time do you miss from work? My answer how much do I miss? None (I can't call in) More like How much should I miss? A lot barley getting out of bed and struggling to stay up past 8 to spend some time with the wife and kids and hardly enough energy for a 2 year old. However as I've read on here my fight is not as hard as others and and we all seem to push through somehow! So keep on fighting and looking for a better pain free tomorrow it's there somewhere! Thanks for a new place to vent seems to help with others who fully understand our fight!
I had a rough time of things growing up and my line of choice was, "Other's have done better after going through worse" Finally, in Chronic Pain Rehab at the Cleveland Clinic I was forced to look at myself and SEE how MY life was AFFECTING ME. Yes, external factors influence us, but if we are pushed to our breaking point, we have to acknowledge that!
After a car accident in 2005, I went to work nearly every day constantly re-injuring myself and not allowing myself to heal for over a year, until I was finally forced to stop working after an unsuccessful surgery.
Have you applied for FMLA? Do you have any disability coverage at work?
I've experienced the same frustration with insurance - i do not understand at all how they can dictate what meds we take or don't take! the frustration is enough to drive anyone to say "forget it" and quit taking anything at all! I'll admit deep down i always pray that i'll get better and not need them and that perhaps it's a sign for me not to be on the meds anyway! But after each round of that, i always find myself in the bed and it's worse each time!
It is wonderful that we can vent here because Lord knows our families do get tired of this!
so hang in there - one day at a time