Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

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what have you found to help ease the pain & Fa

Donna245
Donna245
having lots of pain weakness & Fatigue. with Lupus & RA. drugs rhume gave me not working
close to just giving up & staying in wheelchair.
glorianncook
glorianncook
I am so very sorry that you are hurting and I know how discouraging it can be. Don't give up, but do take care of yourself. What are you taking? Prednisone and Lortabs help me a great deal but neither work all the time. I also take Plaquenil, Methotrexate and Celebrex. Have you told your doctor that you feel this way?
Donna245
Donna245
ty for your reply. I am taking Medrol, & Sulfaslazin 4000 mg a day. Medrol helps but I am not feeling anything from the Sulfaslazin yet. the Fatigue is sooo bad. I think maybe the Sulf is the cause of that.
lycesq
lycesq
Donna, actually, fatigue is a common RA symptom and not necessarily drug related. I have vicodin as a "last resort" drug for a major flare. I'm starting Orencia soon and I'll see how I do.

Lynne
deleted_user
deleted_user
Donna, I also take 4,000 mg of Sulfazine. Every time my RD has increased the dosage, I experience extreme fatigue and it's easy to get discouraged. The good news is that it passes after some time. Hang in there and stay strong. There are many good treatments out there. You may need to try a few out to find the right cocktail for you. I wish you the best.
Leanne
deleted_user
deleted_user
Hello Donna.. right now I am on 10mg of prednisone.. and also on Plaquenil, Naproxen and just started on Mehtotraxate with folic acid... hope this concoction will be able to get me going...

There are alot of meds out there for example the prednisone that you take right in the morning and it works.. I am sure the doctor can find a good dosage for you if he-she wants to go that route
deleted_user
deleted_user
Donna, is there a reason you're taking Sulfazine and not MTX? Or a biologic?
deleted_user
deleted_user
Donna, so sorry to hear!!

I take drugs that are off the beaten path and they work great. You may want to look into them.

Low Dose Naltrexone (LDN) www.lowdosenaltrexone.org

and

Neprinol -an online supplement, you can look at the RA case study online. www.biomediclabs.com

There are always more options, you just need to find the right cocktail.
I know a girl in total remission (off of all drugs) and she was on LDN for nearly a year, and started taking antibiotics. Now she's in full remission, meaning she's been off of both drugs for many months now.
I hope you find answers soon!
best wishes,
-Sarah