Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I'm in a bad "flare" right now and cant seem to find a way to get it under control..the pain is constant..never leaving me even for a moment..its been a month now and i cant seem to see any light at the end of the tunnel...I'm so angery at having this nasty dieases that I can feel the anger pulsing in my veins..NOTHING! NOTHING! is working..some say take some 'ADVIL" here try some" tylonal"..heres ENBREL, HUMERIA,MTX, PLAXLINIL(sp) oh gee..it didnt work ...well lets try ..REMICADE..oh yeah lets add...PREDNISONE!!...dont forget all the perscriptions for ANTI INFLAMATORYS....NOTHING IS HELPING!!!...WHAT THE HELL IS NEXT? this is killing my spirit..I have nothing good to say!!..nothing nice!! when i hear ...oh I have learned so much since ive had R.A..I'm more compasionate for others,god wont give you more than you can handle!!..those kind of comments I hear or read make me want to throw up..they lie!!!! How can something so ugly be good for anyone...IT CANT!! I hate rheumatoid arthritis....if anything could be evil its this!!
Kim
Kim
so sorry you are going through this.
It is evil my friend, it is, I have said the same thing to my husband.
he has seen me crying more times than I can remember..
It's a wicked, wicked thing.
I wish I could tell you when it will get better or if it will get better. I can't.
you can hang on to the hope that something can happen, a new drug or something you find that will help.
Hang in there.
i was like you, nothing worked. I wish I could help. I really do. I know what you are going through.
If you have read my posts or journal entry, you know I vent over things that I have gone through. and trying to find the positive in life is a challenge at times. And I agree those 'feel good' comments you hear can be nauseating.
Hugs.
Anyways I hope we both can find a med that works, I have had no luck either.
Hugs!!!
I hate RA too! I am so so so very sorry you are going through such a terrible flare! One thing that helps me during flares is to take a couple of "airborn" tablets a day. You can buy a cheaper version at Trader Joe's or CVS. TJ's is the cheapest. They have vitamin C, ginger, and a bunch of other stuff that is anti-inflammatory. It's not meant for that, but it does help.
I hope you feel better soon!
hugs,
Sarah
sorry for your pain, :(
Andrea
I started seeing a pain specialist about 4 months ago. I was terrified to go to my first appointment, but it has made a world of difference for me. Yes, I am on controlled substances, but as the doctor explained to me, I shouldn't buy in to the stigma that a person is weak that needs help with pain. If I were a diabetic I would most definitely take insulin. I see the doctor once a month and we monitor and adjust accordingly. Am I "pain free"?..No.
However, the pain is under control and I am able to go to work everyday and take care of my family.
We see our rhuemy to help us fight the disease. I encourage you to see another specialist to help with your pain.
I send many good thoughts your way. -Caroline
I agree with Caroline that you should look into seeing a pain management doctor. It's not fun taking pain meds and they don't take the pain away completely, but at least there's some relief and I'm sure you could use it. Whatever you choose to do I hope it helps.
Kim
I can't believe this pain! Nobody can quite understand what we are going through because they have never experienced pain like we have. Just tonight, I got mad at my husband for not being considerate enough of the hardships that this disease causes for me. I rarely get this upset. Now, I feel guilty for saying it. Damned RA!
We'll find a treatment eventually. I DO believe this! My Doc says it will happen. You will get relief, too! Hang in there honey! Together we will be strong and together we will find a drug that works!
Sue
Just to let you know, I hear you. I am thankful for the internet, and all my support group contacts, and the distraction that I receive from being online. That feeling of being alone is often too real... and it sucks. And I am married to a treasure, but I still get that feeling of being alone. Just to add my voice to the rest. RA is evil and the pain is like the fires of hell. daizy8
I know what I say isn't going to make the pain go away and I'm not going to make any sappy, cliche comments like you talked about because I hate them too. All I can say is don't let it beat you because you are stronger than this disease!
I do find that if I am stressed over something or if I have done too much physically, it can bring on a flair. I was just wondering what kind of foods you are eating and vitamins you may or may not take. Eating sugar can bring on inflammation and so can beef. I eat only chicken or fish and whole grains for bread. I also eat a lot of fruits and vegetables daily. I rarely have flairs, unless I am upset over something and they usually only last a day or two - no longer. I have not tried any of the drugs you have mentioned, only take advil and 1 pain killer just before falling asleep (hydrocodone) along with 1 advil. I know it sounds too simple, but it works for me. I am a lot older (62) so maybe my Ra is not as active as someone who is younger.
I hope analyzing your diet may be of some help. Hang in there.
Norrie
Lynne