Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Let's hope your doc can just read the MRI himself.
My favorite is when under indications on the req. It clearly states "diagnosed Rheumatoid Arthritis" and all the X-ray report talks about is osteoarthritis or osteo-like damage. Only ever mentions RA if there are errosions... All other damage is osteoarthritis to most all radiologists, even in the absence of bone growths (osteophytes).
Dumb asses!
in your case they are all being in the club.
this is the ortho club and they all think you are going to sue.
you need to turn it into the patient inflicts self trauma and tell them about making nice with the cement. I keep wishing we could fly you out of state to a trauma surgeon, by the way (I know wish dreams) - but your arm is complicated now and you need someone out of the club.
Make sure you have the MRI (get a copy ahead of time, as in this week) disc in YOUR hand when you walk in.
I would not fax over the questions, you'll get a stone face when you walk in.
I would
1. bring a second person oh independent one, I know I always go alone also to everything including stuff where you are not supposed to drive, and then I drive anyway BRING SOMEONE
2. have your spouse or friend or whomever it is read through your in your hand written questions - allow them to interject if you miss anything
3. have the MRI CD in your hand
I am sorry this is happening.
depot
As far as lawsuits go, this puzzles me. I have been very clear all along with everyone that this is my own fault. (Actually, it's the fault of the city's incompetents who left an inch-high gap in a curb cut.) While the new injury is adjacent to the surgical site, it's a whole new problem. Not looking for a "failed surgery" diagnosis at all. This newest doc's paperwork actually asks if one is involved in a lawsuit and says they refuse to take patients who are involved in litigation, as it consumes too much of their time. I think my original guy has failed to look at the problem in a context other than my messing up his handiwork, but I have no intentions of siccing any lawyers on him.
I'll call the PT in the morning and see what kind of report he did send, and maybe pick up a copy to have in my little grey folder. I haven't seen any evidence in a very long time that MDs actually read, or even quickly skim, the reports they get from PTs.
I wish I had a good advocate to take with me. My husband is out, as he's really angry about this whole situation and I don't need a loose cannon at the appointment. Can't think of anyone else that would be willing, able, and effective that I could ask. If this situation goes downhill any further, y'all are invited to come on down. It would be so great!
Do they treat someone being scanned for a liver cancer or brain abscess this cavalierly? I feel like I need to find a new imaging facility, too.
Lynn, no one but rheumatologists seem to know diddlysquat about RA, including radiologists and the bone guys. I told this new orthopedist that I have PsA. A few minutes later he was quite puzzled about why I was taking prednisone, and was totally unfamiliar with Orencia. Just shoot me now, please.
When I hurt my back at work a long time ago, I actually ended up with a no joke card carrying patient advocate. it was workers comp, and I had to go to an outside ortho, so they actually sent this woman with me to my to my appointment. Maybe worth a search in your area? Or a call to your insurance? I googled "patient advocate" and a whole bunch of services popped up.
I'm so sorry Alto.
Sounds like you are in the bowels of the industry where these docs will do anything to protect each other. That's what happens I guess when we live in a sue happy country.
and here comes the card you DO NOT want to hear. You are female patient (I know I know I can hear you 2500 miles away as I type this). you HAVE to bring someone. You are not being heard. it's just the way the system can be slanted. let's not take apart the entire history of misogyny. just bring your spouse if you don't end up with anyone else as patient advocate. tell him you'll pay him off in summer craft beer if he does not explode.
depot.
In a situation like this I wouldn't hesitate to go with her - possibly even demand it. When my wife had her multiple back surgeries I was there with her at every appointment. I can tend to easily be over bearing in the presence of doctors while my wife is the opposite. While I do retain the respect they deserve for going through all that schooling and all I still treat them at the same level as myself - just a bit more educated. They will not talk down to me.
Coaltrain, it's the classic medical/industrial complex. Insert patient at one end, extract all available funds, discard patient. I'm hopeful that this new ortho is going to come through for me. There's just so much less for him to work with since the radiologist shirked his duty.
Depot, we are singing off the same sheet of music here. I never believed it when people said that middle-aged women don't get taken seriously, but I do now. I know that when they look at me and my chart and see that I was born in the waning years of the Eisenhower administration, have grey hair, and couldn't give two hoots about sports of any sort, they assume I am far more feeble than I am, and less deserving of care. If I was complaining about the effect this has on my golf swing, who knows. I have looked for people who specialize in injuries to musicians, but no one in the state is listed for that.
Sally, et al., I don't have any other family in the area except for 20 and 23-year-old sons. Great guys, but haven't been to the corner and back enough times yet to be able to have my back on this one.
51%, my fist ortho did explain the difficulty of working on the sternum-end of the clavicle. I'm positive, though, that the distal end is no longer hooked up to whatever it is supposed to be fastened to. I do have a copy of the CD, and It's going with me. I had a distal clavicle excision, a subacromial decompression, and excision of a bone spur in addition to the rotator cuff repairs in August. So is that a solutiojn- fall and foul up the other side, too? If all else fails, might be worth a try! If it got me a little more symmetry, I think some of the muscle spasm might ease up.
Agreed women are not taken serious, especially "of a certain age" I believe they're calling it now. I look younger than I am and have a calm demeanor that I have concluded does more to reflect things are not as bad as they are. Its apparent from my body language I'm in pain, but I go alone and perhaps they think I'm managing okay. I'm not. I've honestly considered acting more emotional at visits but its a gamble.
@alto: gluten + nightshades for dinner
this made me smile. you go girl.
depot
Lynne
you haven't changed much since my neck surgery, only improved :) compassion and help wise
Depot
His final shot was offering a referral to an acupuncturist, always a sign they're getting desperate. On that, I gave him my standard answer, that I have neither the time, the money, nor the willingness to chase after non-evidence based treatments. I did have more control over myself today, and didn't use the terms "quacks and charlatans" like I did with another doctor.
I'm not sure if I will go back to physical therapy or not. It does tend to cause more pain than it relieves, and does tend to make things stiffen up afterwards, although MDs think it's great. He offered to discuss my situation with the PT, but gave me no instructions on how to get that going. He did not suggest any more follow-up with him, either.
What was Sammy's term a few months ago? Doctor-induced depression, I think it was. I just wish a few more of them were as good as they think they are.