First off, let me apologize for swooping back in just because I have a problem / question, instead of being here offering ongoing support. I hope to get back to doing that, but life on a farm sometimes gets out of hand, and that pretty much describes March to the present. On the plus side, my meds and overall protocol is working well enough to allow me to work hard, which is great. I have cut back on the physical work since my diagnosis, but would have done so at my age anyway.
Relevant background: age 62, female, diagnosed 5 years ago, went through the typical progression of escalating meds, currently managing symptoms relatively well on MTX, meloxicam, and Stelara. Official diagnosis is 'undifferentiated autoimmune disease' as it seems to hover, symptom-wise, somewhere between RA and PsA with no definitive markers. Concurrent issues = type 2 diabetes managed well with diet (testing daily), and moderately overweight, although very physically active. Slightly high blood pressure managed with a generic of Benicar, also monitoring daily.
RA / PsA / Whatever the hell it is / symptoms are nodules on hand joints, sausage fingers, hip pain that doesn't offer hints as to its cause on xrays, and occasional not-quite-debilitating but still-not-an-acceptable-level fatigue. I've also had some weird eye issues that my opthamologist says are connected to RA, but think that's unrelated to my current question, so let's skip that for now. I cannot fully close my right hand anymore, and there is a small but measureable loss of hand strength bilaterally. Occasionally I feel a bit unsteady on my feet, but not to the point of passing out, just a bit....wobbly.
I'm vaccinated and had no problems whatsoever, and I received an early vaccination, so it seems unlikely that it would be contributory to my question here. Which, I promise, I'll get to now.
Presenting now with 'tingling' sensation in both arms. Absolutely nothing wrong in legs or feet, it's only in my arms. Most noticeable when I'm physically tired. Not centralized. Not consistent in location or intensity from episode to episode. Lasts maybe an hour or two, and seems to dissipate if I take it easy for awhile. It's been happening for about three weeks.
I had stretches of this when I was first diagnosed, and my rheumatoligist suggested carpal tunnel. I went to PT and investigated that further, and my PT guy and I decided it probably wasn't what I was dealing with at the time. It seemed to clear up when I switched meds (I've forgotten if that was the Plaquenil to Humira transition, or the Humira to Stelara). The earlier episodes were not at this time of the year, whch is relevant because my farm work is seasonal in terms of what physical work is required.
I have also had tingly episodes with my right hip. My insurance would not pay for an MRI, so that was followed up (after inconclusive x-rays) with another round of PT, and many, many exercises to open up tight hips, stretch the iliotibial band and psoas, and whatever other bits were deemed dysfunctional. It helped me in an overall sense, but the passing episodes of pins-and-needles still pop up from time to time. I cannot connect the dots between the episodes and any kind or level of activity or specific movement.
Primary care guy has ruled out anything related to diabetes; he's comfortable with my daily numbers and three-month numbers. He feels it's something connected to the RA/PsA.
Rheumatologist thinks it's a muscle / tendon stress of some kind, and that it's not really in her sandbox.
This is a lot of background, but I thought it might help you see where I am right now. I have the opportunity to consult with a new GP - my guy is in his mid seventies, and I like him a lot, but it's time to be realistic here, and look ahead. My son and his wife love their primary care people, and I'm considering going there for an evaluation, which the kids tell me is extremely thorough. So this might be a good time to pursue this particular problem anyway.
My question (finally, right? :) ) is this: has anyone experienced nerve involvement of any kind connected to your autoimmune diagnosis, and if so, would you feel comfortable offering your experience and input here? I'm not looking for answers exactly, but hoping you might raise some more questions for me to consider, so that if I do go for this lengthy consultation with a new GP, I can do so armed with as much information as possible. Thanks, as always, for your thoughts.
Sooo... MRI shows my vertebrae fracture has healed.That leaves two possibilities:- Spinal Stenosis (which is chronic and degenerative)- Lumbar Facet Syndrome (which is "an arthritic condition of the joints of the vertebrae")ANYONE ever have an epiduralor any other pain blocker?One of my least favorite words in the English language is chronic. Second is degenerative.And I may have both (on top of...
Hi to all. I am a bit frustrated because I went to rheumatologist for fatigue, shortness of breath, overall unwell feeling and blood work showing high sed rate, low rbc, high platelets and high esonophillis. She said my sed rate is too high, but that a sed rate test only shows inflammation but doesn't say why there's inflammation. She had me stop hydroxychloricline (plaqenil) for ten days...