Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Last week was amazing! I had little to no pain and energy that I have not had in over 6 months. I actually worked 41.75 hours at work and cooked dinner every night after work. I spent Saturday running around with my son and Saturday night at my husbands art opening. I felt great almost the entire time.
Sunday I woke up feeling like I had been hit by a bus and had no energy to do anything. I spent most of Sunday sleeping or laying around the house. Pain was not bad but the lack of energy was so bad I felt like I was sick. So I gave in and rested the entire day. I did manage to clean my kitchen.
Monday was not bad. I worked all day, 9 hours I think. Then I went grocery shopping since I did not do it over the weekend. I cooked dinner.
Yesterday was a slap in the face! I woke up feeling horrible. Stiff and sore everywhere, so tired I felt sick. I went into work but only worked 4 hours before I had to go home and nap. Then I worked about an hour and a half and that was it. No cooking dinner or getting any housework done. It was like last week did not happen at all.
Today is not looking much better. Stiff, sore, no energy and crappy feeling. I am so disappointed! I thought the increase to 20 mg of MTX two weeks ago was finially working. This hit and miss crap is for the birds!
So is this what it is like? Great week where I feel almost normal and then aweful week to remind me? I'm sorry to sound like I am whinning but I just hate how unpredictable this disease is. I just want to live a normal life!
I hope some of you are having a better week than I am! ~ Lori
Sunday I woke up feeling like I had been hit by a bus and had no energy to do anything. I spent most of Sunday sleeping or laying around the house. Pain was not bad but the lack of energy was so bad I felt like I was sick. So I gave in and rested the entire day. I did manage to clean my kitchen.
Monday was not bad. I worked all day, 9 hours I think. Then I went grocery shopping since I did not do it over the weekend. I cooked dinner.
Yesterday was a slap in the face! I woke up feeling horrible. Stiff and sore everywhere, so tired I felt sick. I went into work but only worked 4 hours before I had to go home and nap. Then I worked about an hour and a half and that was it. No cooking dinner or getting any housework done. It was like last week did not happen at all.
Today is not looking much better. Stiff, sore, no energy and crappy feeling. I am so disappointed! I thought the increase to 20 mg of MTX two weeks ago was finially working. This hit and miss crap is for the birds!
So is this what it is like? Great week where I feel almost normal and then aweful week to remind me? I'm sorry to sound like I am whinning but I just hate how unpredictable this disease is. I just want to live a normal life!
I hope some of you are having a better week than I am! ~ Lori
Be patient.
Some of us have very few "feel good days" and when I do, I am very guarded at what and how much I do - but I do enjoy the "feel good"
Be well
Bluedogs2
sherrie
I was doing great on 6 pills/week. Went up to 7 this past week and felt like I'd been hit by a truck. Thankfully, it was shortlived. We'll see what happens this Friday (what a way to spend a weekend ;))!
Exercise if/when you can. When I am fatigued, exercise seems to help -- a LOT!
Dana
Can seem like such a tease.
Blue is right, at least with me, I'll over do when I feel good.
Then boom I'm back to feeling like I'm 100 yrs old.
Although I've had my days where I can't find a good explanation as to why I feel pretty good & then so so bad.
Kind of like my moods on prednisone, from one end of the spectrum to the other. (Big sigh!)
Hang in there,
Sammy
And the yo-yo or roller coaster goes on..........
I always, without fail, get rebound thumping by The Enemy if I am audacious enough to behave like all is well just because I have been Tricked Into Thinking I Am Not So Sick After All......It is usually the lure of trying to do something about the garden that catches me out...... Not so much housework......
I reckon the secret is not to let it know you think you are feeling ok. So no busy days and catching up!!!