Sometimes, it just doesn't make any sense at all. It's all just pooh, day in, day out. Consistency, hum ... - pain, yeap, attitude really poor, yes sir, lots of pills, you betcha. -- this great group of good folks always at the ready to comfort and share - Thank God

Sorry you are having such a see-saw time of it. Rant, vent, dump - let it fly, we'll be here when you need an ear or eye or a hug.

Here is to us all having a better day

Peace
Bluedogs2

I tried yoga stretching. My shoulders flared (well minor flare as I'm controlled enough on meds), but flared from my overzealous roundabout arm movements. Now a week later they still hurt. Move, dance, stretch. Blah blah blah. We are different. Some things we can't do. Adjust your lifestyle to your current condition to maximize utilization of your body on a day by day basis. Don't try something you can't do, and don't feel bad about it. We aren't them and probably won't ever be again. That's ok.
I'm sorry your hurting. It sucks. Period.

I must be pushing (or rather holding on for dear life) to the carriage next to you in the supermarket.

dump away. you were probably up all night to boot.

hope the pain med gets you through your work day and that the weekend holds you gently

Depot

I could have written your post myself. I hate the "see saw" ride that comes with the autoimmune stuff. Last weekend I was little miss busy busy running around and doing chores. This morning it took me 5 minutes of sitting on the edge of the bed before I stood up. I just dreaded putting weight on my joints because I knew it was going to hurt bad. I am prednisone fat too. Zumba?? I think not. There are times that those motorized shopping carts look really tempting. I just force myself to walk because I am afraid if I quit I will lose the ability to walk at all.

I hope that you get through your day and back home where you can rest. It's okay to come here to let it out, I do.

I "feel your pain!" Literally, today I do. We've had lots of rain and the dampness makes everything hurt. I have weaned myself down to ten mgs of predisone a day and my hands and wrists have swelled to the point that I can't use them again. Went to the Rheumy yesterday and he said to take more prednisone and that we should start looking at adding another drug to the methotrexate if I can't get the swelling down...........and my kidney function is already showing some inadequacy. Lovely news. Someone made a post on here yesterday about the misconception that people do not die of RA. I think that is highly debatable, but I KNOW that people do indeed die of the complications caused by years of prednisone and other treatments. My father died of major organ failure caused by years of steroids for his RA!

Sorry..........didn't mean to steal your thunder with my own tantrum but just know that you are not alone. Hope your pain eases up so your day is not a miserable one.

I'll throw my frustration in over the exact same thing.
You just don't know. Majorly frustrating!!
Life does not stop for bad days.
You know "of feel like poo today can we host that baby shower next weekend" yea right.
Very hard at times. I get it & I feel for you.
Hugs
Sammy

Sorry to hear you are feeling so horrible today. I hope you will get some relieve soon.
Reading yours and other people's posts here always puts things in perspective for me, especially on days that I feel a bit sorry for myself. I am in pain pretty much every day, but it is still bearable and I am mostly functioning.
I know many of the folks here are worse and seem to be dealing with the mental aspect much better than I am. It makes me want to be stronger myself.

Oh those commercials are not real patients...let them film actual patients and see where it gets them! Feel better

Ya'll are the BEST!!! Hands down, I feel better just reading everyone's posts. I know I'm not alone and I feel for each of you. I am feeling a little better and hope to get back to mostly functioning soon! I will check in again with you later. BIG HUGS (gentle, of course) to you all

I have to agree that I hate the see-saw or roller coaster effect.

I can usually deal with things if I understand the WHY of what is going on. The pain I can deal with because I understand why, and thankfully have a medication that helps take the edge off.

But the feel good for 1-2-3 days then can hardly get out of a chair for a couple days makes no sense to me. Since I have been going through this for over 3 years now, I really pay attention to what I do and what I have done the previous couple days. When I get that "crash" I look back the few days previous to see what I might have done to cause this crash and can't come up with solid pattern. Yeah, I will overdo it on the days I feel better and pay for that - and I understand that part. Took a walk in the woods 2 days ago then my ankles are really bad - I understand that. It's the fatigue and actual poisoned feeling that I can't find a pattern with.

Oh well - at least with threads like this and the great folks on this forum it actually does make it feel a little better knowing this stuff is common with us and I am not the only one feeling this way.

I stand by my life's motto - It is what it is.

Some of you can push grocery carts?? I'm so impressed! My elbows & shoulder don't allow for pushing full-sized carts any longer, and the SI joints hate the reach in to fill/empty them. If the store doesn't have the little ones, it's a basket or bag. Cuts down on the amount of food one buys.

Never knowing day to day is so frustrating! Hard to plan anything, I might feel horrible and have to cancel. I am grateful to when grocery shopping can be done without feeling like I have done heavy labor all day. I use my (small) grocery cart to lean on, while everyone rushes past me, like I am in the way. I am sorry to hear your not feeling so good today. If it's any consolation to you, you have made me feel better about how my life is and you understand. Everyone here understands, and that is something I am grateful for. I do not know what I would do if I could not read this any time day or night to know there are others who get it, My RA is still so new, to me, and always gives me new nasty surprises. I hope you improve quickly. I to hate the RA commercials. one shows a person volunteering building a playground! Ok, is that one in a million person?

I can so relate to the frustration of the uncertainty of the disease. It seems everyday my activities are worked around how my pain levels are on that given day. Unfortunately life isn't that flexible! Then when we do plan something (well, when I do) then I wake up in severe pain and just putting a foot on the floor makes me wince then I know that I'm probably going to have to seem unreliable again to whatever I was planning. I hate that.

Thank you for starting this discussion. I have been encouraged by everyone's comments. It is wonderful to have this place to come to and you know there are others who really understand. I am fortunate I have a supportive spouse that listens and does all he can to help me. I also have a dear friend who cares for her mother with lupus. She gets it and is very supportive. I am grateful for both of them. Sometimes I yearn to be the helpful one in our relationship. When I am feeling my 'new normal' or my best I try to do as much as I can and support them and others. I love baking and fund raising for a good cause. But with this disease we have to be careful or we will over do and be in a 'flare' or so stiff we cannot move the next day. I miss baking my cakes, sewing to the wee hours of the morning, crafting, knitting and making a date with a friend and keeping it. I also have stopped trying to explain this RA roller coaster. One thing RA has taught me is you cannot judge a book by it's cover. You don't know what an individual is going through so take a minute and think before you speak. Gentle hugs to all.

Mary k. hits it on the head when she said -

"Never knowing day to day is so frustrating! Hard to plan anything,"

People just don't understand this. For instance, my in-laws will invite us for Christmas dinner among other things. There is no way I will know how I feel on that day 1-2-3 weeks from now. The closest I can usually tell if I can take a day trip is the night before. Even then I'm afraid of getting the dreaded RA fog and/or the fatigue that goes with it.

The same goes when I go to my Rheumatologist appointment - always the same when I am done making an appointment for 3 months out. I just kind of laugh, take the appointment card, and forget about it until the day before I have to go.