Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I'm coming off the worst flare I've ever had, and thought I was doing better, and then its started to get bad again in places I've not had pain before.
I am lucky that my husband understands, but I know the rest of my family doesn't. It seems worse to me when I feel like my family doesn't get it -- and they don't. I can understand feeling alone. My sisters and I were raised to always be there for each other, and it certainly doesn't feel that way now. Its not much consolation, but you do have us here in the RA group, and we understand what its like when its a bad flare and there's no one who seems to get it. I'm sorry that your daughter doesn't seem to be there for you right now. Maybe in time she will realize that she needs you and will get back into touch.
G~d does love you, and you do have to remember that! Sometimes I wonder why we have RA and why all the other bad things happen, and I haven't come up with any sort of understanding, but I still believe that G~d knows our pain and is there with us.
I don't know if I have helped at all, but I will be thinking about you.
Are you taking something to replace the prednisone?
urnt alone in that i had RA for 11 years and for last 9 years i had avery understanding mom but lately i felt she had enough and she dont care at all she tried many times to avoid me and run away everytime i talk about my pain ,because of this disease im so unsocial and complicated i hate to talk to others about it cause they willnt believe it and they will think that im lying or acting its really hard and keep me alone most the time, i feel so strange and not like others and to see others living there normal life make me feel so jealous i hate it ,i hate it that disease really destroy my life :( sorry to disappointed u it just to tell u that i feel the way u felt and its really hard to handle