Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I now have had two infusions, the second one was 2 days ago, the first one made all my joints feel gret for the 8 days but like I have said cuased bladder issues. this second one, they gave me some sol-medrol and the antihisitmane with the remicade and also lowered it by 100.
this one on day two NO bladder stuff but the pain in my wrists are so bad I can barely type this, I don't usually have pain in my wrisits and the sweeling in the feet and redness did not go away this time.
has anyone experience more joint pain from teh remicade than the ra? this is crazy, I have to find something that works, the enbrel was good but the mri of my feet still showed active disease, I tkae mtx too.
Very discouraged, thanks for listening
this one on day two NO bladder stuff but the pain in my wrists are so bad I can barely type this, I don't usually have pain in my wrisits and the sweeling in the feet and redness did not go away this time.
has anyone experience more joint pain from teh remicade than the ra? this is crazy, I have to find something that works, the enbrel was good but the mri of my feet still showed active disease, I tkae mtx too.
Very discouraged, thanks for listening
I have had the first three loading doses of Remicade and I take MTX, and I have muscle spasms in my legs from the Remicade. It feels like something is crushing my leg when it happens. I am taking flexeril for it but I don't take it as often as I should because it sedates me so bad. I still have really horrible swelling in my feet, ankles, and lower legs. So far the only thing that has helped the swelling is prednisone. My rheumy is trying to get the right dose and frequency with the Remicade. I sure hope it kicks in soon. As far as joint pain, it seems to be about the same as it was before I started taking Remicade. The RA fatigue has lessened though..
I hope the pain you are experiencing will be better soon. Hugs, Frances
Now I feel like i am taking nothing, the first iv which was 400 worked on my joints but this one, he lowered it 300 did nothing, but it did not flare my bladder like the last one did, but srue has made all my joints hurt way more and my more feet, don't know how I will make it for a month before i have another infusion.
Thanks for the reply,
If I were you, I would call your RD and tell him/her exactly what is happening. Maybe that is the way it goes, but it just doesn't sound right to me. Of course, your RD is the expert. Would love to know what he says about this. I really think he/she needs to know. I'm sorry you are suffering. I certainly hope you can get some relief soon!
Blessings,
V
Thanks
So I think it's possible it's a one-time reaction, although of course you need to talk to your doctor. I know how discouraging it gets to be pulled off of meds because of not working/side effects/etc. and then have to start something else and wait for that to start working.
Hope you find something to help with the pain in the meantime...
thanks again