Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
That's my two cents....perhaps others who have had a better trip with RA would feel different.
So it is possible to have a life and a future. But no, I don't intend on ever going back to work. I talked with my union, and they said they really don't want me. I have 9 years till retirement. I really am not strong enough to teach a classroom, with standing and all my exhaustion.
So you can make a life for yourself, but you do have to be flexible and not put too much stress about accomplishing great things. I am thinking about writing a book. Then I probably would not post so much. Anything is possible, but sometimes it is difficult.
What was once possible becomes not so possible and the reality of how the disease effects us causes many of us to change our original plans and our paths drastically change.
I know what I can and can't do and no amount of "mind over matter" or 'confidence' is going to erase or change what RA has done to my body and my ability to do certain things.
I think it is great you are currently in a job that you love , but you admit that it can get overwhelming at times and you have bad flares. It seems the RA is not completely under control.
I do not doubt that you could peck away at getting that degree, slow and steady in your own time. But what does it mean being the clinic director, More stress? longer hours? demanding? more responsibilities? What would the reality of being the CD truly be like?
I am not trying to deter you from seeking your dream, I think it is great that you have this ambition but you certainly need to consider the beast of RA before making decisions. Only you can decide on this. Like Death said, you know your situation better than any of us.
And i forgot to include that ray of hope called "remission", that is always something to hope for.
I wish you all the best.
Being kind to yourself is a top priority - perhaps giving yourself another 6 months before you need to decide will help you get a better idea of what you want/need to do.
Just don't be too hard on yourself.
I wouldn't wish this on anyone...
Kust know that whatever you decide to do or not to do is OKAY, as only you really know how you feel. Good luck, marcia
I think it all depends on how much fexibility your profession/job can offer. If you HAVE TO be there all the time (no one can cover for you) then its really hard to deal with those bad flare days. You really need the kind of job that more than one person does in the company so its not the end of the world if you miss a day or two.
If the more training and better job mean more fexibility then I say go for it! But if more responsibility means the business can't run if your not there... then I wouldn't do it.
I'm currently in the latter position... run my own business. Don't frankly know what I'm going to do... but I know in the very near future I won't be able to do what I am doing now. Means closing a family run business that is over 36 years old now... its such a damn shame.
I try to live with the perspective that I have this disease but I have 20 more years of working and the possibilities are endless.
I'd encourage you to dream and try to live between the reality of the every day & knowing that one day with better drugs, treatments or a change where RA is not such a beast for you that you could follow your dreams. You are young & obviously intelligent and have so much to offer others in your profession. It's hard to know what the future will bring as we manage the daily grind of living with a chronic illness but I want to believe that life will get better.
I am not currently working and am thinking what should I do to re-enter the workforce which is okay for my health & family commitments. It's hard to decide during these early years of the disease. But I try to live with that idea that RA doesn't always have to hold me back & I need to pursue some of my dreams.
These are some of the big questions involved with living with this chronic illness. I posted a topic called 'RA dx & planning for the future.....' on 12 Feb 2010 & I found the replies very interesting (including one of yours).
You'll decide what's best for you in time.
Cheers, Anna