Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Last Enbrel injection was March 1.
It does appear many of my symptoms were Enbrel related. We all just need to learn to trust our own gut! I suspected Enbrel but kept going.
Enbrel elevated liver enzymes. They are now in normal range, although I'll continue with liver doctor another month or two to ensure they are stationary so I can start new RA drug.
I had vibration in one leg since week 2 on Enbrel and lower back pain diagnosed as lumbar facet syndrome. Steroid injections into lower back helped immensely for back pain for 16 days. Vibration continued during the relief period.
Vibration is gone now - I feel certain it was the Enbrel for it too. (had to be checked out by neurologist to be sure it wasn't related to something like MS)
I also had shaky muscles in shoulders and legs- like a squeaky windshield wiper effect when it eeks throughout the motions, stopping for milliseconds during the stroke. Doctor mentioned rigidity. That has now lessened to almost being gone. I feel certain it was the Enbrel.
I am really disappointed as I thought Enbrel was the magic bullet for my RA. I wonder if all anti-TNFs will do this.
Has anyone else had Enbrel side effects related to liver or neurological issue?
It does appear many of my symptoms were Enbrel related. We all just need to learn to trust our own gut! I suspected Enbrel but kept going.
Enbrel elevated liver enzymes. They are now in normal range, although I'll continue with liver doctor another month or two to ensure they are stationary so I can start new RA drug.
I had vibration in one leg since week 2 on Enbrel and lower back pain diagnosed as lumbar facet syndrome. Steroid injections into lower back helped immensely for back pain for 16 days. Vibration continued during the relief period.
Vibration is gone now - I feel certain it was the Enbrel for it too. (had to be checked out by neurologist to be sure it wasn't related to something like MS)
I also had shaky muscles in shoulders and legs- like a squeaky windshield wiper effect when it eeks throughout the motions, stopping for milliseconds during the stroke. Doctor mentioned rigidity. That has now lessened to almost being gone. I feel certain it was the Enbrel.
I am really disappointed as I thought Enbrel was the magic bullet for my RA. I wonder if all anti-TNFs will do this.
Has anyone else had Enbrel side effects related to liver or neurological issue?
You just never know.
Perhaps calling the hotline to see if they have had others reporting these side effects. If not you may want to report it to the FDA.
I have I feeling it's listed some where under the numerous possible side effects. May simply state Neurological you know.
I'm sorry. It seems so unfair when your caught in a catch 22 like this.
Really not sure if you'd have problems with other meds. I did fine with one & awful with another. Curious to see what your doctor has to say.
Sammy
If liver enzymes ever really go super high, you'll get dark urine and yellow eyes plus have easy bruising. But our bloodwork is done far too often for it to get too bad.
I'm hoping to just do plaquenil. My RA isn't too bad. I get bursitis mostly because the RA attacks the synovial fluid of the bursa. If I didn't have that happen, I'd be ok with no drugs except mobic for now.
I'm glad your liver numbers are subsiding. That's scary.