Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I've been taking it for 18 weeks, and overall symptoms are now less, but not gone by any means. "little things" like mouse and tablet use tend to be repetitive movements for hours at a time, and I find this causes me a fair bit of pain too.
Re exercise, seems that it's important to keep the joints moving even when they flare, but move only as far as is comfortable, and it can be short bursts of movement, often...probably much much less than you would normally consider to be exercise.
First, I was diagnosed in 1992. I've been on MTX since then. I started at low dose, then titrated upwards as needed. Over the years MTX isn't as effective unless you increase the dose over time. In my case, I was maintained on about 12.5 for some time, then as I noticed flares, the dose went up about 2.5mg a year. Utlitmately I reached 25 mg, which is generally considered the max dose for RA. When that dose helped for a while, I had to resort to Kenalog intrajoint injections and eventually Humira was added [6 years ago]. I currently am stable on 7.5 mg MTX + Humira bi-weekly.
It took, if I recall correctly, about 3 weeks or so before I noticed improvement after starting RA. Since they caught it early in my case, it doesn't surprise me that it could take up to 3 months for good improvement to occur. [Most people aren't as lucky as I was with an early diagnosis.]
If after say 60 days on MTX if you feel you're worse, you still need to titrate the dose higher [your doctor should do this, not you]. Remember, you've probably forgotten what it feels like to feel good and have learned to adapt to pain.
Exercise: cut back to about 25% of what you used to do. Are you able to do that without pain the day later? If so, add maybe 10% more of the same exercise and keep checking. Gradual change is key here. Anytime you hurt after [or the next day] exercise you need to cut further back. Don't push it. You'll get there.
There's no clear textbook case that we all follow. Hah! If only it was that simple. It's different for all of us.
I know too well the pain when mousing with the computer. I managed to partially relieve that situation by getting a true ergonomic mouse. It's become pretty pricey, but here's the link:
http://www.rakuten.com/prod/microsoft-natural-wireless-laser-mouse-6000-metallic-gray-microsoft/203452190.html?listingId=506554047&sclid=pla_google_PCMONDE&adid=29963&gclid=CjwKEAiAmJvBBRDKpP724LigwngSJAAYRJXB4TBi_FKTG8p0KLJ5eTYGHiPcoUds0cd9TMeuXr5QoRoC_Ijw_wcB
I swear by it.
Pace yourself in anything that requires joint movement.
Scoates, is the plan to add a biologic to your treatment? Or is your rheumatologist just trying to see how well the MTX works?
That said, I think you've got the idea here already that your RA has to be under control first. My MTX works pretty well. I lift weights and walk on tread or swim. But there weight I lift is 15-20 lbs where it used to be 70-100. And I have still a few days of stiff fingers afterward.
Now I'm on methotrexate. It works mostly. I still get stiff and flares but they aren't so bad that i can function. They're just annoying. Can't exorcise with any vigor. My dose was 15 which did almost nothing. Now I'm on 20mg