I'm so sorry GrammyKat! I know this is miserable. To answer you question, yes I have had this happen. But, for me, it's not from RA. I also have MS and that's what bring about the usage issue for me. Thankfully my MS is in full remission and has stayed that way for a couple of years now.

Another reason for this sudden weakness could be a drop in blood pressure. When your blood pressure drops suddenly your body thinks it needs to send all the blood to the brain and organs....which leaves your legs without. It could also explain the dizziness and nausea. Do you have blood pressure issues or are you taking blood pressure medications?

I'd definitely follow up with a doctor!

Triad....I didn't realize that arrhythmia could be linked to RA. I had WPW, corrected via surgery, several years ago. Is that the type of arrhythmia you're talking about? Or more on the lines of atrial fib?

Triad -

Are some of your research papers on the links posted previous ?

Bluedogs2

Triad -

Are some of your research papers on the links posted previous ?

Peace

Bluedogs2

The first 2 years after diagnosed, I had RA bad in my knees, they would buckle. They also would pop and hurt. Now since my RA is controled it quit doing that.

=) Lin

Thank You Triad - I find your information most interesting and being a sufferer as I assume you are I am interested with a concern of course, as we all are.

I went into the DINET site (Dysautonomia Information Network) and was overwhelmed with information which of course spurs my inquisitive nature about the global term "RA" and all that it brings forth. My question was aimed at if there are works of yours there, I would be pleased to read them there among those peers. Not being a medical person or trained as such, I will be doing a lot of back and forth reaching for understanding and how it relates to my conditions.

Again, just thinking I would read yours there first since you are in our "gang" if the term is allowable. Such a wonderful group of folks they are.

I appreciate your comments - just takes the old guy a while to digest and file

Peace

Bluedogs2

I am so sorry this is happening to you. It sounds awful. Nothing like this has happened to me, but I am a newbie. I would definitely get it checked out. It could be a lot of different things. Good luck to you and I will be thinking about you!

Thank you all for your answers. Triad, you have a wonderful knowledge. Thank you for sharing. I will be seeing my Rheumy in about a month. Will have to talk with him about this. Thank you all again.

Triad....what about Sphincter of Oddi Dysfunction? Is that related to enzyme issues as well? I suffer from these attacks and I'm at the mercy of them. So many things can bring about attacks!!

It does sound terrible. As a health care consumer and sufferer, I am sorry you are dealing with this. I had similar symptoms which were transient. I hope yours get better.

As a clinician, I think it would be irresponsible to start suggesting the numerous possibilities in a forum such as this. You really need to follow up with a neurologist.

Thank you Triad - That certainly helps the old guy. I can now see where this is coming from. As a point of reference, my DO and both of my rheumys AND my endovascular surgeon are sorta looking at my case with the idea that there may be enzyme and hormonal imbalance involved. This is the point of my probing the DINET website, trying to find of if any research at all has been conducted down a hormonal/enzyme path.
Had a 31/2 hr meeting with Endo guy last week and he was as knowledgeable as any rheumy I have met thus far on minute details of RA action / reaction to both meds and environment. Gave him a copy of the case study from Johns Hopkins-

Sorry your group has somewhat dissolved, but you are welcome here to our gang. Such a wonderful group of folks.

Peace

Bluedogs2

I'm sorry to hear you are going through this! When my hips are flaring badly I am known to "crumple" - that's the best word I can think of.

Comes out of nowhere - I'll just be standing or walking and BOOM - if I don't have something to grab I go down for the count.

The dizziness and nausea sounds more like low blood pressure or even low blood sugar to me - I say this based on my own experience, since I deal with both regularly.

Get thee to a doctor and check it out, for sure! Best of luck, GrammyKat - sending you warm thoughts of support!

GrammyKat -

I hope you are doing better today. Sorry that this has befallen us all.

Peace to your heart tonight

Bluedogs2

Yes, this has happened to me, don't know why, just add it to my ever increasing "list"!

Triad

Are there studies about INCREASED levels of estradiol in older male RA victims where other hormones are compromised or rendered ineffective even though the glandular activities indicate normal function ?

Am looking for specific studies that are less than 5 years old or active study groups currently engaged in double blind tests

2ndly - can B12 be over prescribed - Is there such a thing as too much B12 when taken as a direct supplement and not as a general OTC vitamin supplement

Peace

Bluedogs2