Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Well, I digress.....my one piece of advice would be to discuss your pain meds ahead of time with your doctor. I found out too late how unsympathetic my surgeon was! He was actually a jerk and expected everybody to progress at the same rate, regardless. I tried to explain to him that my fibro made my recovery more painful and difficult, but he made no accommodations for me. He also had me going to therapy five times a week, which according to the therapists was too much.
I discovered a wonderful website for knee replacements, called bonesmart.org. I would highly suggest you go there now and begin reading. Those people are so wonderful and I owe my sanity during that time to that site. It is managed by a former orthopedic nurse, or it used to be.
I hope I didn't frighten you, and I've heard of so many people who did great with no problems. I think I had a difficult time because of my fibro and having an unsympathetic surgeon, who demanded I be pushed at therapy to achieve a certain range of motion in an unrealistic amount of time. After he released me from therapy, I began doing better, because I was able to work on it at my own pace, and I now have range of motion that is just fine for my lifestyle. It can take some people longer to achieve it than others. My doctor didn't understand that.
Best of luck to you. I'll be praying. Please keep us posted, and you can message me anytime. Do check out that website.
You can't take NSAIDs before or after surgery as they tend to make the platelets sticky and cause clots...a huge problem after surgery that can kill you!!
Most docs order walkers after surgery but with bad hands you have 2 good options. The first is platform crutches where you put all your weight on your forearms. I'd strongly suggest you ask your ortho's office to order them ahead of time and you get them at a medical supply pharmacy so you can get used to them in case they are still too hard on your hands. If they are, you can have specialized crutches made up where they attach platforms to regular crutches so you have the underarm support and can literally use them "hands free" as they have straps to hold your arms in place. This is what I did as my hands and wrist were really bad. But beware, they are very heavy. And again, need to be made up ahead of surgery.
Pain meds can make pain worse and be inflammatory but trust me, you'll need them. A TKR is like having the femur and tibia all broken....they do cut off the tops of the bones and until it heals, it hurts!
Having had 2 done at once, I distinctly remember the recovery process......it goes in 3's. The first 3 days are hell so just hang on and it will get better. We can all get through the worst 3 days...can't we? Then it jumps to 3 weeks...the bones start to grow into the implants and you feel better. At 6 weeks, the muscles have really started to heal and you should be able to start getting off all the pain meds....you'll sleep so much better that it's really worth it for that deep restful sleep. At 9 weeks, you should be off the pain meds and walking hopefully with no support except maybe a cane.
At 12 weeks, it's all up hill but a slow recovery. Most orthos will tell you it takes a full year but in reality, it's 2 years. Takes a year for the body to stop remembering you have fake knees in there!
And as soon as you can, walk, walk, walk...speeds the growing of the bone into the implants and muscle healing. Expect bad pain to pop up now and then as they do cut nerves and they take 8-10 months to heal and will let you know when they have healed with bursts of pain...their way of saying hello, I'm back. Muscles are the 2nd slowest to heal, 6-8 months so you will have spasms off and on for that long.
Hope this helps.
Jen
PS....use lots and lots of ice!
One more thing for the ladies here, they give you a lot of powerful antibiotics during and after surgery and I get vaginal yeast infections at the mention of antibiotics. So if you are one of those who gets bad yeast infections when you take antibiotics, get whatever you use in the house before surgery as you'll need them after. My MALE ortho never said a thing.
And I agree with Buddhacat...ice for the joint itself and heat on muscle spasms to increase blood flow and remove the lactic acid that is causing it.
Jen
As far as a walker was concerned I rarely used it as I did not really need the walker after a day or two of being home. I would use it then forget it behind in the kitchen or bathroom. The doctor had PT come to my home the following day after I arrived home for 2 weeks and I did very well. I was very nervous going into the surgery, but now I see, I did have a slight set back where my knee was stiff soon after I went for my 6 month check up so my ortho doctor ordered PT. PT said I would need to do some sort of exercise at least a few times a week for the rest of my life. I find my knee is sore in general many days even now, especially with the rain or snow. That does not happen to everyone I am sure.
The site that fibro lizzy recommended bonesmart.org is a true lifesaver. I too highly recommend you get involved with that group. I am still involved with it and have met a few lasting friends on the site. There is even an area to chat with those who have RA and a replacement part. Go through the site as there is a plethora of great information. Again good luck to you and keep us posted!!
Congrats on the success!
Jen
Pam