Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I thought I was doing so great Friday! I took my MTX injection in the morning like I always do. I had the day off because I was on-call all week. My son and I did some running around and went out to lunch Friday morning. We were out about 3 hours. I went home and took a nap for about 2 hours. Then when hubby got home we went out to dinner.
After dinner my husband really didn't want to go home so we dropped our son off at home and went to a local bar to listen to a local live band. We did a little dancing (about 5-6) and got home about midnight. I was so happy! I was feeling well enough to do all of this on a MTX day! It was awesome and so needed.
So I wake up yesterday morning in some serious pain. I think every joint in my body hurt. My hips, right shoulder and hands were screaming. Feet and ankles we none too happy either. So I took it really easy yesterday. Lots of sleeping. I did get a little bit of light housework done and managed to cook dinner but nothing too difficult.
This morning my left hip is killing me! It flat out does not want to work. I am having to use a cane to walk. UGH! I need to go grocery shopping today. Laundry needs to be done today. I have work tomorrow and I really don't want to have to use a cane at work.
I hate this! I have one good day and then have to pay for it for how many days? It is maddening how this disease is so dang fickle. It just messes with your head.
I hope everyone is having a better day than I am. I know it will pass but dang it, I just don't have time for this crap! ~ Lori
After dinner my husband really didn't want to go home so we dropped our son off at home and went to a local bar to listen to a local live band. We did a little dancing (about 5-6) and got home about midnight. I was so happy! I was feeling well enough to do all of this on a MTX day! It was awesome and so needed.
So I wake up yesterday morning in some serious pain. I think every joint in my body hurt. My hips, right shoulder and hands were screaming. Feet and ankles we none too happy either. So I took it really easy yesterday. Lots of sleeping. I did get a little bit of light housework done and managed to cook dinner but nothing too difficult.
This morning my left hip is killing me! It flat out does not want to work. I am having to use a cane to walk. UGH! I need to go grocery shopping today. Laundry needs to be done today. I have work tomorrow and I really don't want to have to use a cane at work.
I hate this! I have one good day and then have to pay for it for how many days? It is maddening how this disease is so dang fickle. It just messes with your head.
I hope everyone is having a better day than I am. I know it will pass but dang it, I just don't have time for this crap! ~ Lori
I'll have a audio book going in the background so I can close my eyes and fully relax. Sometimes I use candles, but oftentimes I just turn out the lights.
Don't chintz out on what you pour in the bath either. The bag is like $6.00 and it lasts once or twice, it is still an inexpensive price to pay for some pain free time.
Does anyone else every daydream about some time in a sensory deprivation chamber?
Keep good notes relative to the meds and reactions including what you did. As you search of the "magic mix" of meds you will be able to tell what worked and for how long and what didn't work and on which meds. It gets complicated sometimes not knowing if it was exercise or food or meds or combination -
Don't give up as Dear camba says - NEVER
Be well
Bluedogs2
BD2, I hear you on the meds. Two weeks ago I tried to increase my MTX and it really knocked me for several days but that was two weeks after the first increase. I may try the increase next week and see how it goes. Apparently, I need it since I feel so bad this weekend.
I managed to get the grocery shopping done with the help of my husband, cane and the motor scooter at the store. So frustrating. My husband seems really frustrated as well. Maybe, it's concern. We really don't talk about the RA so much.~ Lori
I'm going to hold at 8 till spring - go thru all the tests again and go from there
Be well
Bluedogs2
MTX kicked my butt all week. Getting better now but still dragging.
It does not help if a spouse is not supportive. We also do not talk about RA much in our home. I am sure it incredibly frustrating for our spouses too.
Keep fighting!
yeah the capriciousness messes with one's head. normalcy versus coping. especially when work looms on the horizon. i am sorry you see-saw'd.
hang in there.
yes Fiery the sensory deprivation chamber sounds devine as I heal best when resorting to almost a meditative state when I am whimpering away from a flare. reminds me of childbirth. get in the trance to get through the pain.
Ros