Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
And I thing Rheumatoid Arthritis, also falls under the inflammatory arthritis category, but there is specific criteria to meet to be diagnosed with it.
If the rheumatologist is board certified, then the diagnoses you got was pretty much correct, you can always get a second opinion.
A lot of doctors call themselves theumatologists, but in fact have an interest in rheumatology, and are plain medical doctors with no board certification. If this was the kind of doctor which diagnosed you, I would definitely get a second opinion. Most probably by a board certified rheumatologist.
Wow, things can change on a dime!
That is my "official" diagnosis from my rheumy.
Inflammatory Arthritis (an undifferentiated term. PsA, RA, etc fall under it) is treated the same way as RA and PsA.
I have extraarticular symptoms as well. Including, but not limited to: Localized Scleroderma (no further progression once I started on MTX), an undifferentiated connective tissue component (causes muscles spasms in my intercostal muscles), weird toenail issues/"dyshidrosis" on one foot (I'm curious if it is actually Psoriasis) . . .
All of my research has basically led me to learn that the treatments are standard and very similar to RA.
When I have a flare I use a Medrol dose pack (Haven't had one since February. Yay!).
I take Sulfasalazine 2500mg daily (3 in the am 2 in the pm), MTX 6 tabs once a week, Meloxicam 7.5 mg daily. As needed: Flexeril (I take atl least once a day to keep muscle spasms at bay), Tramadol and I have a script from the ER for Percocet (from when the muscle spasms first showed up; it doesn't help for my "normal" joint pain. It does help if a spasm gets out of control.)
Please PM me if you have any questions.
I know that you have had a lot of complications from MTX. How are your lungs doing?
The term inflammatory arthritis covers a number of conditions, typically autoimmune forms of arthritis like Lupus, Sjogren's, Rheumatoid Arthritis, Psoriatic Arthritis, Anykylosing Spondylitis.
My GP said it's when they know that you have a form of autoimmune arthritis but it's not exactly clear which one yet.
Usually it doesn't stop you from being treated, which is the most important thing.
Good luck.
I think they are just telling you that you have sero-negative arthritis. I just hope you demand treatment, and get it before you get irreversible deformities like me.
And Rheumatoid Lung Disease is part of RA. What is with these rheumies and all your people? It just angers me because of how badly I was treated the first 7 years of severe RA.
Any time I get frustrated at how long it took me to get screened, diagnosed and treated, I remind myself that it wasn't nearly as long as some (like your case).
It helps me to be less frustrated.
It also makes me share my story so others, hopefully, don't have to go through it as bad.
Only my CRP and Sed rate were elevated. No specific antibodies have been elevated. At least not the ones that I have had run (Anti-ccp, Anti ENA, ANA, etc.).
I had horrible fatigue, was febrile, horrible morning stiffness, could barely walk, etc. I know I have irreversible joint damage, but I am lucky to not have deformities, etc. At some point I anticipate having something done to my thumb. Hopefully before I lose complete function . . . but I really hope I can hold out until a few years after I graduate.
By the way, my stiffness has always been worse in the afternoon, wierd!
Lynne
So, yes, it can cause your labs to be "normal" especially if you have been on it for a while at a high dose. 40mg is a "high" dose and rightly so for its indicated use (preventing Pulmonary Fibrosis; they want to stop your body from creating scar tissue, etc)
Your medical records are your property. Your former rheumatologist does not have the right to keep them from your current doctor. They are important in your treatment.
See: http://www.tmb.state.tx.us/consumers/faq/mrec.php
Looking at the "patient information" section of rheumatology.org, the website for the American College of Rheumatologists, there's a good explanation of lab tests. They say that RF is positive in only 30% of people with early disease, but climbs to 80% with time. I've heard people refer to anti-CCP as the gold standard, but they say it's positive in only 60 - 70% of RA patients. Seems to me that they would know if anyone would.
So, a positive test means you have it, but a negative doesn't mean you don't. I thought erosions were proof positive it IS RA, though. The big question is, is she willing to treat you? If not, move on. If so, I'd be less concerned if she is calling it "RA" or "Walter" as long as she's doing something about it!
I think autoimmune diseases just express themselves differently in different people, both in type and severity of symptoms. Think of seasonal allergies-- some get runny nose and sneezing, others just get itchy eyes. Caused by the same thing , but different symptoms, same treatments.
I'd suspect that there are a few people out there (in the world, not necessarily this site) diagnosed with sero-negative (no Rheumatoid Factor or anti-CCP) Rheumatoid Arthritis, but actually have symmetrical Psoriatic Arthritis. You don't have to have Psoriasis to have Psoriatic Arthritis. My rheumatologist also said that 80% of people with PsA develop the P after the arthritis or never at all. Some people just have nail changes or even just a family relative with P. People with PsA typically have normal RF and anti-CCP. Some have elevated ESR and CRP, but usually doesn't cause deformities as bad as RA. Apparently that's what my 'inflammatory arthritis' is looking like at the moment, although I have no Psoriasis or family history, but have nail Psoriasis.
I think it seems sensible of your doctor to keep a vague, but solid diagnosis of inflammatory arthritis. It doesn't prevent you from getting appropriate treatment, but hopefully they'll wait to diagnose it as RA/Lupus/PsA/AS whatever when they're 100% sure. It's worse to have a diagnosis then have it taken away . I've heard in the USA once you have a diagnosis of Lupus or RA etc on your record, it can make it difficult to get insurance.
I know what it's like not having an actually diagnosis. But I've been on Plaquenil for 8 months now and for the past month I've seen 95% improvement in my joints from this time last year. From my joint point of view, I'd say I'm pretty close to being 'normal'! I'm happier to have the improvement in my symptoms than a solid diagnosis. So just try not stress too much!