Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Hi, I'm Jensy, 33, with Rheumatoid Arthritis, Fibromyalgia.
I really feel like I'm stuck. I can't stand all the pain, and because of the pain, I really can't do much. I've been playing piano my whole life, classically trained and all that, but my hands hurt too much for it. I can't play anymore. Not even slow pieces.
I'm not good at anything else. And I'm a stay at home mom and while I loooove my daughter, and wouldn't trade being her mama and taking care of her for anything in the world.........I need myself too. I need to be just Jensy.
A lot of hobbies and things would cause more pain.
And when my daughter is out of the house - what am I supposed to do then?
I just feel really stuck with this disease (and with fibro too). I really don't know what to do.
I really feel like I'm stuck. I can't stand all the pain, and because of the pain, I really can't do much. I've been playing piano my whole life, classically trained and all that, but my hands hurt too much for it. I can't play anymore. Not even slow pieces.
I'm not good at anything else. And I'm a stay at home mom and while I loooove my daughter, and wouldn't trade being her mama and taking care of her for anything in the world.........I need myself too. I need to be just Jensy.
A lot of hobbies and things would cause more pain.
And when my daughter is out of the house - what am I supposed to do then?
I just feel really stuck with this disease (and with fibro too). I really don't know what to do.
But once you've found the bullet that works for you - whether it's diet or drug - life becomes truly profound. As this period of test and trial will give you an empathy and strength that no one but us has.
What has your doctor prescribed so far?
Now, all I want is to be able to walk so I can lose some weight because I have put on quite a bit of weight over the past year, since my last long and horrible flare that started in August of 2013.
You may laugh at this (or others may laugh), but it takes everything I have to get on my little elliptical at home and do 125 steps forward and hen 125 steps backward. That's it. That's all I can do and even with that, my feet still hurt. I do take some ibuprofen right afterwards to try to knock down the immediate inflammation. But even doing those 250 steps makes me feel just a little bit less pathetic and a little bit more hopeful. Maybe you can just decide to play one song per day (or one piece, if you play classical). My granddaughter plays piano too, and she just loves to play and play and play, so I understand that it is difficult to just play one and then quit. But one is better than none. And you never know, you may be able to work up to two. Sending love and hugs your way.
I take Neurontin for fibromyalgia, ibuprofen, meloxicam and I have weed edibles at night for pain. I've tried every herbal or vitamin whatevers listed on websites. Nothing helps.
I can't even play a single song on oiano now. Not even a one minute piece.
I can't really have any other painkillers. Former addict, see.
JensyM, I'm so sorry that things are so bad for you right now. I can tell you have a passion for the piano. Would you ever consider teaching it? I guess if you did that, you would have to start with intermediate students so you wouldn't have to actually play to demonstrate. I just hope you can find something, anything, to bring that same joy back into your life.