Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
While I know I can easily qualify for one, I guess I am stubborn and refuse to get one so far. I guess my main reason is seeing how the handicap parking spots seems to be so abused.
I have my days when I really wish I had one, but more days that I can make the hobble the extra distance. If I am in a flare that limits my walking, I just stay home. We do our grocery runs only twice a month, and will usually pick a day that I can walk decently.
i really didn't want to get one because i'm so young and not visibly disabled and whatever other crazy reasons but i'm glad i did. my rheumy only approved a temporary permit, which is six months, and then i suppose we'll reevaluate. of course, i feel like she did that because she doesn't believe i really need it and that i'm somehow working the system. which is ridiculous but, hello, i'm batsh*t insane.
so. yeah. it was free and not too hard to apply for (i originally filled out statewide forms and my town was like, no fill out these and we had a bit of back and forth but whatever). it definitely helps on days when i have more than one stop to make.
I have not been to a big box store (Walmart, Kmart, Target, etc.) in MONTHS because just thinking about having to park so far away and through the huge store layout is exhausting!
I have been to the mall about 2 times in the last year and those were both on "good days" when I knew I could tolerate the walking. I avoid anything that has a big parking lot or has items I need on opposite ends of the store.
I'm thinking a handicap sticker might help me get out more if I feel like I will have one less obstacle to over come (huge parking lot). But I am worried that my doctor will say 'No' or think I'm trying to abuse the system.
Like a few of you have said, I have "good" days and "bad" days. On good days I can walk it just fine. But bad days, I can't go because I don't know how far I can walk. :/
I never go to malls, I can get through a market by leaning over the handle of the cart. Good Grief, this foot stuff is ridiculous! At work, I am able to sit down most of the day. If I overdo it, my feet will burn and ach all night.
I seem to do a lot of running around. Three times a week for my water aerobics class, once a week to the acupuncture, and lots of Doctor appointments. Sometimes my Hubby and I go out to dinner. That's about it.
It actually expires this June. And since I haven't gotten another stress fracture since switching to diabetic shoes and my RA has been mostly in remission for over a year - I'm not renewing it.
Yes, it's hard to admit that you need it. But I sure needed it throughout my 30s! It was a life saver
I wish I had one everyday. Walking to the building in the morning isn't bad but leaving at night I am worn out.
When I got it? When I was finally officially diagnosed. I say officially because like many others, it took awhile to get to that. I'm 37 now, but things started when I was 24, got worse when I was 33 and everything went to hell when I was 35.
SecretSurvivor, I know what you mean about the big box stores like Walmart and Target. I really don't like shopping at Walmart, never did, but the one near us actually has benches placed all over the store and it really helps.