Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
But just when you get use to what you will consider a typical flare for you something will really set you off, for me it was stopping that darn predisone, I was fine one day and woke up the next with my kneee so swollen I could barely walk on it and I felt not only like a Mac truck had run over me but then it backed up and did it again.
So it is hard to say but I am sure you will get alot of varying and interesting answers to this question, this is one disease that is completly different in each person and completly different from moment to moment! take care and welcome to DS!
Crys
But just when you get use to what you will consider a typical flare for you something will really set you off, for me it was stopping that darn predisone, I was fine one day and woke up the next with my kneee so swollen I could barely walk on it and I felt not only like a Mac truck had run over me but then it backed up and did it again.
So it is hard to say but I am sure you will get alot of varying and interesting answers to this question, this is one disease that is completly different in each person and completly different from moment to moment! take care and welcome to DS!
Crys
Once I started treatment with Prednisone and Methotraxate, my symptoms became very mild in comparison. Still, I don't consider myself in remission because for this I would have to meet the medical criteria of no indication of inflammation in my blood and no other sign of disease activity ( no pain, no fever, no swelling, no water retention). I know that I am not yet there.
My current condition is so much better than where I started, though, that I consider myself in a sort of "subjective remission" (my own definition of remission). In this type of remission, I can do practically anything that I want to do and I can be almost the woman that I used to be before RA started. For me, this is a reason for celebration even if I don't meet the medical criteria for remission.
I hope for you that you will be in remission soon too. All the best. Me
I agree with the other posts. For me, a flare is when I just plain hurt. My wrists are extremely painful; I can't make a fist and usually my ankles and feet hurt. Sometimes, my shoulders are painful too. My hands swell and hurt.
Remission - I agree with D. I had a couple months where I was completely objectively symptom free. It didn't last, but I treasured those two months.
Lynne
I'm currently in what I call a "semi-flare".
I can work, but I'm exhausted at the end of the day and my knees, ankles, and wrists hurt all of the time. I cannot climb stairs and I just want it to go away!
Just started Arava and hope for good results. Side effects are bothering me so far.
Karyn
Mine was during the night. I felt like I had a mild fever when I went to bed, and a sore throat.
When I woke up, I could not turn my head (stiffness and pain in the back of my neck), this huge knot in my right throat (could not swallow), and then a check off list of stiffness and pain in joints from shoulders on down including wrists, fingers, knees, feet, toes. I had to slowly roll out of bed. I limped to walk. It was the worst thing that ever happened to me.
Since then, mine have come in different places and spreads the wealth around. For a while a shoulder will be inflamed, along with some fingers, then it will move to another finger. Sometimes it's in one foot, sometimes both.
I would add fatigue to the flare symptoms. A lot of time I only think of the joint pain, but I also get so stinking tired.
I do not know what remission is yet. I have relief, using drugs, but I would not say I was in remission.
B
I was fine one day and woke up the next with what I thought was the flu. I doctored for 6 days, not getting any better. Went to the dr. and long story short had RA. My original flare consisted of severe pain in my feet (to the point I couldn't walk), pain in my hands, my fingers swelled up like sausages, pain in my jaw (couldn't eat or talk) and just a horrible feeling of fatigue like I had the flu. That lasted on and off for about 6 months. I have been on Humira now for almost a year. I am not sure if I can say I have had anything like the original on set flare. I have had times where my hands got bad or my feet, but nothing, oh God, nothing like the original flare.
I wouldn't say that I am in remission, but I will say that the drugs are managing the symtoms. I still have rough days (mostly related to the weather), but I can't say that I have had a "flare".
To try and answer your question, I would have to say imagine your worst days, the pain the difficulty in functioning and use that as a type of compass. Compare how you are feeling today to that. If you are feeling better and can function, then hey, chalk one up for the team! If your symtoms are close to your worst and you are having a difficult time coping, then I would have to say that is a flare.
Hope this helped. And thanks! You gave me a perspective to gauge my disease that I hadn't thought of before. So thanks for your help! Hugs!
I have never been in a full remission. Have pain in and around joints everyday - with different ones being affected, never knowing which are going to bother me the next day. Never know if I'm going to have any energy to do anything. I was worse a year ago in the summer and figured I was in a 'real' flare - lasted about 3 months till finally I got to where I am now, daily pain under some control with meds. I also have Fibromyalgia so that is figured in with me too and certainly compounds the issue for me.
I guess you will just have to see over what happens with time. It might help to keep a daily journal about your symptoms and experiences. With that you might look back and see when you had differences and then can figure out what a flare is for you and what a remission might be for you. Keep us posted on how you do. --Carol
You talked about see elderly people getting along with a cane and here you were, so much worse off. That is one thing about having RA (and Fibro) that bothers me, seeing people older than me getting around so much better. Yes, I'm 64, but in my mind I shouldn't be needing a cane. Look at all those elderly people out there - those in their 80's, 20 years older than me, who are still getting around so good - and here's me with a cane and nothing 'visibly' wrong with me. Makes me feel kind of rediculous, but then I think they are probably thanking their lucky stars they didn't get hit with RA and Fibro. Having this disease doesn't just affect us physically, it can make us feel bummed out for many reasons, including wishing we could get around like those who are older. That might be a silly little thing to some but it's something I still have to deal with in my head sometimes. When I do get like that I try to remember that there are those of you out there that are so much worse off than me and try not to feel sorry for myself. Sigh.
Hey - let us know what your Rheumy does for you.... and good luck! --Carol
bigi