So I went this week to get my rheumatologist to change my biologic. My hands/wrists, feet/ankles were swollen like balloons. Although my big joints were fine.
I can barely use my hands, the pain is so bad. I'm getting ulnar drift in the middle finger on my left hand, that wasn't there a week ago. I knew he was going to be unresponsive like last time. Really, Cimzia has never worked well for my hands in the 4 years I've been taking it. I inject once weekly. The first day, my hands & feet feel so much better. By the next morning, the stiffness and pain have returned.
I only have 3 biologics left. So I asked him to go back to Kineret, and he called it names, and said no. I told him I understood it doesn't work for most people, but it worked for me-100% for 5 years, with mthx.
So, he told me he was going to send me to another rheumatologist for a second opinion. Told me I can leave him and find someone new. I realized I have been wanting that for a long time. I'm in a small town, it may be difficult to find a new rheumatologist, in a reasonable amount of time. But, he's not doing anything, so changing and having to wait is about the same.
I had 4 years of this in the beginning, massive flares, and 3 doctors turned me away for it not being RA, because I was was Sero-negative. I've never had a psycho-somatic illness in my life. I've had lots of people not believe me, esp. my parents, who didn't want to take time out of their busy schedule of golfing and making money to take me to a doctor. But in the end, I was always right, and the doctor would back me up, when they finally took me to see the doctor!
It's a strange place to be, With no rheumatologist. And painful!
So, I wanted to share this devotion by Greg Laurie. This is only the second time that I've heard someone say (or write) that I'm responsible for the "soil condition" (i.ie. stoney or good) of my heart. I used to not know that and thought we were just stuck with "whatever we got".Anyway, here's the devotion: Pastor Greg's Laurie Daily Devo Monday, November 8, 2021Hearing with Your...
I've been taking Predisone since Aug (dosage now down to 5mg unless bad flare then I'll take 10). The rheumatologist prescribed methotrexate a month ago and says it takes awhile to get in your system. Pain, swelling, mobility and strength loss are very tough for a lifelong active person. None of the meds seem to help much. A few people have spoken highly of infusions - what do you think?