Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Hi
I just had my first remicade in fusion of 400 they said was the dr sadi to use 500 but since i am sensitive to meds, tehy ddi 400.
I had my blood pressure drop big time on me down to 110/45 I felt a litle pressure in my chest and indigestion but it easied up in about 10 minutes and after 3 hours, it took forever it was over and I felt okay.
I have had symptoms of a running nose and some headache and blood pressure is sitll low for me but okay.
I read that the low blood pressue is acutally an allergic sign, I did take a tylenol and a zrytec before had. I am worreid that the next infusion in 2 weeks will cause me more side effects, does this happen, with each dose you get more side effects?
So far I an not tell I have taken it as far as any relief.
Thanks
I just had my first remicade in fusion of 400 they said was the dr sadi to use 500 but since i am sensitive to meds, tehy ddi 400.
I had my blood pressure drop big time on me down to 110/45 I felt a litle pressure in my chest and indigestion but it easied up in about 10 minutes and after 3 hours, it took forever it was over and I felt okay.
I have had symptoms of a running nose and some headache and blood pressure is sitll low for me but okay.
I read that the low blood pressue is acutally an allergic sign, I did take a tylenol and a zrytec before had. I am worreid that the next infusion in 2 weeks will cause me more side effects, does this happen, with each dose you get more side effects?
So far I an not tell I have taken it as far as any relief.
Thanks
deleted_user
Hello! I don't know much about infusions, but I just wanted to say that I think you have some valid questions, and I think it would be good to talk to your rhematologist or to one of the nurses at the infusion center. I do know some doctors give their patients prednisione before infustions...at least that is what I have read. I hope the med starts working for you soon.
CharlieBaxter
As I said before I have been on Remicade for 2 years. My normal BP is 120/65 to 80 I don't know what your BP is normally but as far as I know you are in the normal range. Remicade for me took some time to act, I am talking 6 mos before I really started to notice significant results. Runny nose, never had that, headache, comes with the tired feeling for me, don't really experience that anymore. Hope this helps, don't panic, it takes time, it isn't like taking an aspirin. Charlie
ncgranny62
I'm on this journey with you. I actually felt better the very next day after my first infusion. Some people get fast relief while it takes longer for some. I will have my third infusion on Sep 8. We have a wonderful nurse (thank you Lord for Danny) who does our infusions. He is very knowledgeable and easy to talk to when we have questions. He monitors us throughout the procedure and at one point, took me in to see my rheumy while I was still on the IV because I was experiencing some muscle pain. It's a serious drug so it is only natural for you to have some concerns. BUT one little lady at the Infusion Center just received her 60th infusion and says Remicade gave her back her life. That's what I want for all of us.
basslure
I have not tried Remicade but had tried Orencia and Actemra and had a reaction to both after 5th and 6th infusion respectively. Both reactions were about the same as yours and what they did was stop the infusion till blood pressure came back and diziness stopped, after resuming infusion and reactions did not return they continued infusion till completed, but when reaction return your rheummy will likely try you on another biologic. I have just been approved by the wonderful insurance company for Rituxin which my 1st infusion of this will be in 2 weeks. Like you I hope it works. What I mentioned previously if you continue to have a reaction you will probably be asked to try another biologic. Just hang in there and hopefully they find a combination that works.
anacortes
thanks for all the replies. It is the end of the second day after my infusion and I am still having some bad bad muscle pain and headaces and a little sore throat. the nruse called today and she said that the dr will probalby wnat to pre med me with soem cortisone next time, I hope it works. so far joints are the same and the muscle pain and headaches are worse than the ra pain, we will see.
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