Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Hello everyone...it's been along time since I last posted. If you'll remember I was going to go this alone and ditch all my meds and just live on Aleve. Well, I'm back to eat crow.... I can't do this alone. I've been on Enbrell for 6 weeks and so far nothing. Major flares almost every other day it seems. Ankles are swelled, hand, wrist, fingers, you name it and it probably hurts.
On top of all the pain, we are trying to get our house ready to put on the market. I just can't handle the stairs anymore and neither can my wife. She too has Arthritis, although not RA but just plain Arthritis in her knees. We're downsizing to a ranch and it has been difficult for both of us trying to declutter the place.. I had to hire someone to come and do what I've always done since I've owned a home. Painting, minor repairs and landscaping... Broke my heart to sit and watch and then write a check....lol
Anyway, I checked in most everyday to read post and see how everyone was doing, so in that respect, I never forgot about all of you. This is a terrible disease and we're all in together. Good to see some old friends and nice to see new people posting, although I'm sure they like us would rather not be here for the reason we are... Does that make sense? lol
Have a great weekend and talk to everyone later.
On top of all the pain, we are trying to get our house ready to put on the market. I just can't handle the stairs anymore and neither can my wife. She too has Arthritis, although not RA but just plain Arthritis in her knees. We're downsizing to a ranch and it has been difficult for both of us trying to declutter the place.. I had to hire someone to come and do what I've always done since I've owned a home. Painting, minor repairs and landscaping... Broke my heart to sit and watch and then write a check....lol
Anyway, I checked in most everyday to read post and see how everyone was doing, so in that respect, I never forgot about all of you. This is a terrible disease and we're all in together. Good to see some old friends and nice to see new people posting, although I'm sure they like us would rather not be here for the reason we are... Does that make sense? lol
Have a great weekend and talk to everyone later.
Glad to see you back.
My doc told me one time, if you don't think the Enbrel is working, just quit taking it. That lasted all of 2 weeks and I was back on the weekly shot routine.
One other time he tried to wean me to once every 2 weeks, we started with 10 days apart and going to 2 weeks after about 6 weeks; I lasted 3 week at the 10 days apart and went right back to weekly again.
I guess I have learned my lesson.
Like you, we know that eventually will have to move to a 1 story house. We have only been here for about 2 years now, so I am not quite ready for that, but it is coming.
For now, enjoy being the "supervisor", and let the young ones do all the manual work.
Take Care,
Kim
It's not easy to give up who we are, so taking a biologic to be ourselves isn't a bad thing. It's necessary.
houses are selling like within a week or two around here at listing price so I , think the market has become hotter, so best wishes for you on this new journey in your life!
Depot
Houses with stairs look like a really good idea at one point, don't they? I hope you've found a single-story place you like.
Sorry you're feeling so bad.
Don't be a stranger, huh?
Stairs are a huge pain, plus I have this old house, 2 outbuildings, and 6 acres to take care of. Talk about frustrating! I've finally got myself into a routine of doing one chore a day for a maximum of 45 minutes. Between that and my wife helping we are keeping up. There is no way we could afford to move - to find a place that is remote enough to not have any neighbors would be very expensive.
Glad to hear from you. Keep pumping that Enbrel in. I hope you get some relief like I had - just takes some of us a lot longer for it to kick in.
Sorry you've got to eat crow. But you do what you have to - don't ya....
Stress from moving doesn't help. Hope you feel better soon.
Lynne
LOL I'd rather eat crow any day then kale! LOL
When at the height of my RA flaring (so far that is) we moved to a ranch house. I too grinded my teeth as I paid people to paint, landscape, and do all the things I love to do to make it a home.
Then two years after moving in I was almost into a remission state. Got myself the second love of my life, a Greater Swiss Mountain Dog, only to find I had to have both hips and elbows operated on her before she even made it to one!
All I can say is ranch homes rule! I wouldn't have been able to lug around my 120lbs Swissy from room to room if it wasn't for main floor living and a ramp I made her to get to her potty. Now no one in my family needs a ranch but we all love the security of knowing when we get decrepit enough - it's here for me including my raised toilets ( no ramps for me to get to them though :-D ) !
You'll love it once you are nestled all in. I even like having less "junk" to worry about from the downsizing. ;-)