Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
But my MTX and Orencia aren't working :( majorly, but I'm still holding out hope they might!!!
I'm scared, but hopeful.
I'm tired of being tired and not being able to move. I'm 32 and I feel so OLD.
The only time I've felt great in the last 5 years was after I finished shock doses of pred (60mg orally for 5 days). I felt young again.
We've been looking for an answer for years. As much of a pain as any of these diseases are, an answer is what I yearn for.
Thanks for listening. Just signed up today!
Cass
And on good days, I'm really hesitant to overdo it . . . vicious cycle.
He did seem heartened when our allergist told him how far RA treatments have come in recent years. That since I'm young (32) I have a good outlook.
From what I'm reading I have a moderate case. And like you Cassie2u, I am in pain, all the time. I just deal with it.
I've been in pain every day since August 10, 2005; when my car got hit by what might as well have been a tank.
It's not that I don't want to do those things.
It's that, until I see a rheumatologist and get on proper treatment, I'm stuck in a holding pattern of fatigue and pain.
I have to tell them I DON'T HAVE ARTHRITIS I HAVE RHEUMATOID ARTHRITIS its not the same thing and I wish I just have a touch of arthritis..
I don't want peoples pity at all, but dam who named this terrible disease? They got it ALL wrong. Did they realize it was gonna lump us in with someones old broken arm? Or with someones wore out joint? Feeling like your hands have been run over by a car and having an achy joint every once in a while is NOT the same.
We realy do need another name for it.
Something really SCARY sounding...LOL.
One that's even worse when you tell people it's an auto immune disease, some idiots think that means some sort of contagious thing like aids. GEEZ...seriously?
I finaly just stop telling people unless they ask.
Most of the time, unless people know, I just say I sprained something.
Hugs,
Missy
I don't get mad... I get even. (Got a better deal after all was said and done)