Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
Forgive my ignorance, but it just seems to me that using an epipen for allergies is over the top. So it causes me to wonder: what exactly happens to you when you're exposed to pollens?
~~~~~~~~~My dog takes a new veterinary drug called Apoquel. What a game changer for her. I've been tempted to take it myself [there's no human equivalent].
Best wishes and please talk to your doctor about your treatment plan and concerns. that's my best advice to you.
I saw my PCP yesterday (that's how I got the extra epipens). She prescribed Allegra but my insurance wouldn't pay for it. The receptionists at her office weren't able to get it together before the end of the day and help me get a prescription for something else. So, I did try seeing a doctor and it wasn't much help. Im just trying to get through weekend before I can see a different doctor...
I take it daily.
Xyzal is now prescription and it's an augmented Zyrtec (hence the z) that is less sedating than Zyrtec. Zyrtec is over the counter and decent.
Benadryl is the old faithful. I take it at night. It helps my immune system quiet down. When I'm really bad, I take it during the day and deal with being groggy.
Lastly, if you aren't getting relief, a steroid shot for allergies will also calm your RA. Or a low dose of prednisone can help daily. It's an added benefit that it knocks out both issues.
There are several steroids to choose from if you get a shot. It might just be what you need for the current season....which is miserable!
The drug inside the Epi-Pen is epinepherine...a synthetic form of adrenaline...the fight or flight hormone our body makes. No, it will not loose it's effectiveness over time but it may kill you instead.
"Epi", as they call it, is used in life threatening situations. When you use an Epi-Pen you are supposed to go to an ER immediately for cardiac monitoring...it is that dangerous. Several years ago I had to use the ER for a bad reaction, possibly anaphylaxis and ended up getting "lectured" by the ER doc as he was prohibited from giving epi after accidentally killing a patient. A young woman, similar to me a that time, came in saying she was going into anaphylactic shock and needed epi. The doc figured she knew what she was talking about and without taking a history or checking her vital signs, gave her epi. An hour later she was dead from a massive stroke brought on by epi.
Epi is used in anaphylaxis to reverse potentially fatal cardiac problems that can arise with severe allergies......not for hives or sneezing or swelling or the feeling that you can't breathe...but cardiac shock. In true anaphylaxis, the pulse goes up and up as the BP falls and falls, eventually putting the heart into a quivering state....and then it goes into arrest. Epi makes the BP rise. And it can rise so much, it can cause life threatening strokes.
In the case of the young lady who died, she had already used her Epi-Pen but not told the doc and he didn't check to see how high her BP was and gave her more epi, sending her into such high BP, she died of a massive brain hemmorhage(stroke).
I learned to take epi VERY seriously. My last 2 bouts with anaphylaxis were both in my allergist's office from getting my allergy shots. In both cases, I got my shots within 24 hours of getting my Orencia infusion. Doc hadn't seen or heard of any kind of reaction like this so my problem was going to hit the journals as a possibly new cross-reaction. I kept Orencia and stopped my allergy shots.
But both times it took 4-5 injections of epi to bring my BP back up and stay up. I am one of the unlucky people who doesn't get symptoms like itching or rashes or wheezing or anything when I go into anaphylaxis....my heart rate goes way up and my BP crashes...usually within 10 minutes of my encountering anything highly allergic. I will die without epi. And yet I fear it too as I've had multiple strokes.
You NEVER manage allergies with an Epi-Pen. If they are that bad then call your PCP and get script for prednisone...it will help you far more than epi. Pred is the strongest anti-inflammatory and allergic responses are just that....another form of inflammation.
And if you insist on having an Epi-Pen, you should also have a home BP monitor and be checking your BP and pulse every few minutes to see if your BP is falling while pulse is rising and then and only then should you use your pen. And you should go to the ER as soon as you use it. Your systolic BP goes over 200 and you are in stroke territory and epi can do that with ease.
This drug is a killer and way too many people think that it must be fairly harmless or why would they give to the "lay person". They do because there are people who will die within minutes without it. And I know...for sure...that the box Epi-Pens come in and the instructions from the pharmacy and the prescribing doc all tell you to go immediately to the ER after using your pen. It can save you at the time but kill you after the fact.
Stop using your Epi-pen to control a pollen allergy before you accidentally kill yourself.
Okay...now go ahead and yell at me.
Jen
Hence the lecture I got. But he got through to me. Then I had my own close calls...that is enough to make me as fearful of Epi-Pens as this poor guy was.
Jen