Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
I have RA, rosacea, and dry eyes. No sjogrens diagnosis - no other dryness except eyes. I use restasis drops 2x day and have lotemax to use when needed. Honestly, most days my eyes are good to go except after 8pm when they are gritty/itchy/burning. I just have to use the drops and go to sleep.
I think it's normal to have depression. I don't know if it's being attached so much to a disease that doesn't let up that gets to us or if somehow the actual disease makes us depressed. In my anxiety, I know it's understanding the situation all too well - I know how the road is going to be (bumpy, miserable at times, and completely altered from the rest of the world). If something terrible happens, the reality check gets me in a good mental state. (Like a friend of my husband who is 55 has lung cancer. It's now in his kidneys and they thought his brain - their family celebrated it not being in his brain as if there wasn't cancer everywhere else! That put me in a grateful state of mind) Eventually, something happens and I worry myself right back into a tizzy.
It's definitely worth talking to your doctor about. You will certainly be reassured that you are well within your right to be depressed.
Then again with such a diagnosis & another along with it I sure would not think it's abnormal.
I went through a period of feeling depressed & still do from time to time.
I would not deem it clinical but it's there.
At one point I attended a support group at my pain managements office. Honestly I think I was the only one not on an anti depressant.
Can't touch those MEDS with a 10 foot pole. Bad reactions.
He retired so the group closed. Sad as it helped.
I am having trouble copy & pasting from my IPad. If I ever figure it out Ill share all the info I come across.
For now I'll check to see if I book marked that site for you.
Really hope it gets better. Very tough on top of everything else.
Hugs, Sammy
You could certainly try one and see. For me, it helps me be able to bear everything going on with my health.
Let us know!
Hope you find help with all of this. I think the chronic pain, even if low at times, somehow affects us chemically through depression or m as bye the inflammation is pressing on certain parts of the brain. I'm always trying to figure it out. Best wishes and hugs to you. You are not alone!
Some things in life are inherently depressing. Like RA. It keeps us from being as mobile as we want to be. It limits us and threatens us. And it hurts! And it won't go away! To be depressed by that is normal.
For all of my experience with both depression and living with RA, I can say that I am quite sure that the best thing to do when you start feeling depressed is to just get up and do something... anything. Even (especially) if you don't "feel" like it. Before you know it, you will feel better because you move that internal focus outwards.
Vette, there's always someone who has it worse. No matter how burdensome our own troubles are, I don't know too many people with whom I would trade their troubles for mine. You have some new things to deal with. Don't they always feel like just the last straw? But then they're not, and you go on another day, stumbling towards the next pothole.
Trooper, I'm a big believer in the "act as if" trick. "Perhaps if I act as if I'm a functional human, I'll get my pathetic ass out the door and headed to work this morning." "Maybe if I act as if this bat$#!t crazy person is sane he'll start behaving a bit more reasonably." "Maybe if I go to this party and act as if I'm enjoying it, it actually WILL be fun." Works as often as not.
it tends to feel better if i use fake optimism. fake movement (call it chair dancing) and limit negativity.
i have been called a pollyanna, that doesn't get anything but a positive rise out of me. i just kind of smirk and say, "not really."
i notice that this side of my personality is constant since childhood. i did not have any use for it then, it works to my advantage, now.
depot
it is overwhelming; adjusting to the RA and sjorgrens and figuring out your 'new normal' can take time. if you can afford it, seeing a psychologist or therapist who has some experience in chronic illness would be a huge benefit. if you cannot afford it, try to find a local support group for something - call your local hospital. on long island i know of at least one hospital that has a sjogrens support group. if all else fails, look for emotions anonymous - it's a twelve-step 'meeting' based around mental illness and depression. at the very least you may make some connections with people who get what you're going through.