Seems like you have some lab values to support the possibilities. All of mine were normal, but the evidence seems to outweigh the labs. My rheumy has a full load and getting in is usually a 90 day wait. I had to wait almost 5 months to get in for the first visit. Be patient and read up, write down your concerns and be a good advocate for yourself.

Good luck (esp. with the patient part! I'm a "want it now" person, too!)

I've really learned patience from two things: 1. being a mother and 2. RA:( 10/31/13 is right around the corner so hopefully you will get a quick diagnosis and a plan of action soon.

Thank you tnfarmgirl! I know I am being terribly impatient. I also understand that some people can takes years to get diagnosed so I am thankful that I got into a rheumy as quickly as I did. It's only been 3 weeks since I saw my primary about this so I am lucky. It's just the need for a plan that drives me nuts. Thanks for the reminder to be patient.

"10/31/13 right around the corner" is of course easy for me to say but I know it doesn't feel that way when you are hurting.

Suera, thank you, I know it's just around the corner really. I think part of the problem is that not only am I tired of the pain, I'm scared! I know it takes a while for the meds to work, my numbers are pretty high and the damage goes on. It will just take me a little time to adjust. Thanks to all of you for listening!

Hey Lori. I do not have an official diagnosis of any type either. Altoclef is diagnosed with psoriatic arthritis, and was threatened with large shipments of kale if she left this board. This support group is wonderful even if you are "confoosed" and sans diagnosis.

Some good suggestions here

My 2 cents is patience and learn. Rest when you need to, eat right, do what you can do that you enjoy and try not to worry.

I know it is difficult it has been for all of us, each in their own way, but still, difficult.

Rest and Peace to you
Bluedogs2

I hear you, Lori. I have an appointment on the 30th where I will get my lab results and hopefully some sort of a diagnosis. I, like you, hate not knowing; to be in so much pain but not having any reason for it, so you can't work on making it better. Right now, I would be happy to get any diagnosis, no matter how awful it is, I just want to know. Try to keep busy for the remaining 9 days until you can see your doctor! Try doing fun stuff and get your mind off it until it's time. I hope by the 31st you get some answers so that you can start planning accordingly!

OH Boy do i know what yo mean Lori by having a plan..it took me many years to get the diagnosis..but rite before that i bought books and read up on autoimmune diseases ..and also on RA ..i had my family dr tell me she felt strongly it wa RA way befeor the rhuemy decided ..so this is a waiting game ..but i put a small plan in place for a smidge of sanity ..ive lost confidnece in dr's a bit from past issues ..but if this helpr you ..educate your self now ...change a few things in your life to get a jump start .yuo know your body best ..i must admitt once you know it does change the way you look at life ..and its a tough pill to swallow for some ..hang in there .and you ARE NOT a outsider ..we are all in this together ..do you kow how many sero negative RA people that there is on here ?? ALOT ..so stay and learn ..if not for you ..maybe for someone else that may come in your life with the same doubts and questions about all of this ..
Tami