Hi Didyann,
I can sympathize with you. I try to put off doctor appointments unless I have to go. I still feel like I get the "oh, you again, what is it this time" from the docs.
You just want to tell them, listen, I really wouldn't be here if it wasn't something that I really just can't ignore any longer.
Know that you are not alone in this fight, we are all here for you if you need us.
Kim

Oh girl your not alone. Very hard to deal with as you sure feel alone.
Know that you have plenty of company & understanding.
You do what you have to do.
It's not worth suffering if something can help.
Think it's safe to say we all feel the same as you at one time or another.
Your worth it & do what it takes to feel better.
Hugs
Sammy

Hey, Didyann,

Well, I can certainly guarantee that you are not alone. I am right there with you. Miserable, and with horrible foot pain. I recently went to a podiatrist who had custom orthotics made for me, but I am still having awful foot pain. I had to pay $350 for them, haven't even paid for them yet, and don't want to go back and pay any more for something else that won't work. I was just looking online for a foot massager. Seems there are some out there that vibrate that may not hurt. My RA doc doesn't think my foot pain is from RA. Strange, because when I was in remission, my feet did not hurt at all. I think the only thing we can do is continue to try new things until something helps.

It is common sense to take a method and try it. If it fails, admit it frankly and try another. But above all, try something.
Franklin D. Roosevelt, Looking Forward

Having RA in the feet is surely the worst. Everyone says, well you can still be active -- walking is great for people with arthritis... I don't walk anywhere unless I have to!! -- just taking a walk for fun or fitness is totally out of the question.

Thanks everyone. I really do need you all. I guess misery needs company. Tootsiesmom you hit the nail on the head when you said "Oh you again, What is it this time?"
So far Trooper45 yrs the only relief I get for foot pain are my ice packs. I literally sleep with them cocooning my feet.

I know exactly what you are feeling... BEEN there... DONE that!!! Over the years I have done this a lot and YES it gets so tiring!!! It doesn't bother me any more what others think... I know what they think and don't care.... but it does bother me seeing the doctors... I go to one doctor... and he will say I need to go to this type of Doctor and I go to that doctor and then I am told yet I need to see another doctor... I think as of now I have one PCP and 6 specialist that I see (off and on)...I just know with what is going on with my blood sugars that I will be sent to a specialist for that too. The bad part is sometimes I don't know which doctor to see for some of the news things that are cropping up. Like right now... I am short of breath with pain in my back and my throat seems swollen.... so is it heart related or is it my lungs or maybe just my spine or it might be that I am allergic to my insulin again or it might be the new meds I have just started or oh heck it could just be hayfever. As for my husband, he has been very good about my illnesses but if I talk to him too much about it... it is more then he wants to hear because he can't change it for me. He does get tired of me being sick most of the time and of all the doctor visits... we say "Our social life is visiting Doctors. Thank goodness we have this place to talk to others that know just what we feel!!!!! Hope you get to feeling better soon.

Didyann,

I know exactly how you feel! I also have a loving husband who supports me but he doesn't really have any idea what it's like for me. He has his own issues related to diabetes so he does understand the chronic disease part, but he's not in pain every day, all day.

I feel like the only ones who can truly understand are the fellow RA Fighters who are going through the same things we are.

maybe we are more interesting (grasping at straws) :)

just think of how shallow you would be if you had perfect health, still and understood no one and anything but your goddess body/health and the physical pursuit of every goal you ever wanted to mow down - i know a couple folks like that....and they suck at getting the frailty of life

this crap disease invades your every point in your body that is why you feel like a hypochondriac because you have to keep a separate calendar just to remember meds, infusions, prescription renewals, authorizations, appeals, referrals, physical therapy appointments, orthotics, injections, pulmonologists, the liver doctor who drones on and on, the orthopedic who always wants to operate, the neurosurgeon who will not believe you can't swallow right, the ENT who wants to give you acid meds just to cover it up, the primary care who is tired as crap of you, and the NP who sees you when you get something ridiculously wonderfully routine like a freakin' strep throat.

otherwise, you do feel like a goddess.

we get it

you feeling better tonight?

Depot

Didyann, put me on the list of people who completely understand. I'm sick of doctors' offices. Sick of filling out their stupid forms, sick of listing all the meds I take, sick of listing all the drugs I'm allergic to, sick of listing all the surgeries I have had. I look at all that and think, "What a loser. And, if they really cared about any of this crap they'd give me enough room to write."

I've had an unbelievably frustrating stretch on the medical front, and everyone's words ring sooooooooo true.

I am with you. Tired if it all. I envy those of u with spouses. Mine passed away at 38 years old and I would endure any amount of pain to have him back. Even though your husband's might not totally get you he is there supporting you and loving you hang in there with them.
What I wanted to say is yes I am so tired of try this drug no you cant take that drug because you get infections so go off this drug take this antibiotic and when your done with that start this new shot. Ughhhhh this is my fight now and I do it alone with no husband for the last 14 years...sorry guys just venting......whew.... take care all of u