Rhabdomyosarcoma Support Group
Rhabdomyosarcoma is a type of cancer, specifically a sarcoma (cancer of connective tissues), in which the cancer cells are thought to arise from skeletal muscle progenitors. It can also be found attached to muscle tissue, wrapped around intestines, or anywhere, to include the neck area. It is most common in children ages one to five, and teens aged 15 to 19.
There is not much you can say, unfortunately. If you've never lost a child, there is no way to express sincere empathy for your brother and sister-in-law. It has been said that there is no greater loss than the loss of your own child. At 22 years old, I lost my teenage brother to the disease. He and I were extremely close and in some ways, I was like second mother to him. My brother, mother and I experienced the course of his disease together so when my brother passed away, my mother and I looked to eachother for support. I suffered (and continue to grieve) from the loss but have tried to be strong for my mother during this difficult time. I know that, no matter how badly it hurts to lose my brother, my pain cannot compare my mother having to go on in life without her baby. I know my mother will never feel complete without him but, realizes that his absence is for the best. The only thing worse than losing someone you love is helplessly watching your loved one suffer.
It must have heartbreaking to watch Benjamin fight for his life. After the denial, anger, frustration and struggle to seek answers the ultimate question, "why my child?", Benjamin's parents will most likely feel a sense of relief. Knowing that their child has reached his eternal resting place and is no longer suffering from such a horrible illness should bring them tranquility.
You should not feel obgigated to say anything until the appropriate words come from your heart. Feed off of their emotions and offer support. The best thing that you can do is listen, The last thing you want to do is give advise that may be interpreted as telling them how to feel. If they are feeling angry and bitter, remind them that it is okay to feel that way and ecourage them to vent their frustartions. If they are enjoying fond memories and remembering how happy Benjamin made them, smile and share ther joy. I can tell you from personal experience that my parents and I were much more welcoming to support than advise immediately after our loss. You should offer your help in other areas so that they can focus on themselves and eachother now. Offer to help with funeral arrangements or caring for their other children if thery have any. I assume that they have many well-wishing friends and family members staying very close and trying to help right now. They may need some space or alone-time so you can help by reminding the rest of your family to respect their privacy and allow them to grieve as a couple. The hardest time for them is yet to come. When the funeral is over, the flowers/gifts/cards stop coming, and they begin to transition back into life before cancer is when they will need you most. That's when you should make it a point to check in frequently, ask them open-ended questions about their feelings, and remind them how much you care for them.
I hope this helps. Please let me know if you ever have any more questions. God bless.