Rhabdomyolysis Support Group
Rhabdomyolysis is the breakdown of skeletal muscle due to injury. The result of this process is renal failure due to accumulation of muscle breakdown products in the bloodstream, which are injurous to the kidney. Treatment is with intravenous fluids, and dialysis if necessary. The main therapeutic measure is hyperhydration (by administering intravenous fluids), and if...
I was admitted into ICU on 08/04/15 with cpk levels greater than 20,000. This is my first round of Rhabdo, and the cause is still unkown. I am 20 years old, 21 next month. Three days into being admitted, I had a muscle biospy done. Testing like crazy. I'm back home, levels down to the normal range, and I am seeing multiple specialists to figure this out. I'm writing today to hopefully get in contact with anyone else who has been affected by Rhabdo and how recovery is and the best way to go about it. It's been a little while since i've been out of the hospital and back in my own bed, but still extremely sore, weak, fatigue, and sick feeling. Yesterday, I had tried to excercise lightly, but that just made me feel worse. It's still difficult to walk as I have no strength in my body I feel like whatsoever. If I lift my legs, or walk down/up stairs, I shake uncontrollably and have to hold onto something or I feel like I'm going to collapse. I can only lift my arms up for a minute until I get weaker, and start shaking. I have pains that shoot throughout my body and quickly goes tingly and numb. I'm really looking for answers as to how long this is going to be in effect and what are good ways to regain your strength back..I know nutrition is a good role, but I'm being tested and seeing a specialist soon for my gallbladder as I cannot keep food down and sharp pain on my right abdominal side after eating. So it's very difficult to get a good nutrition in me right now. Any protein shakes or drinks that would help me get the nutrients I need are good to know. As before this, I never really got into fitness or "healthy" nutrition. Reminder, they haven't come to a conclusion as to what has actually caused all of this. So if anyone has any information as to what I can now do to continue to keep my levels down, and regain strength, and mentally be able to handle all of this and keep fighting, I would greatly appreciate any information and support. Would really like to hear anyone else who has gone through this and what has helped you. Thank you for your time. -Jessica.
I'm sorry to hear you went through this. I developed rhabdo 3 weeks ago and honestly don't know the way forward and no one seems to be able to give me any advice, so I started a YouTube series in the hope that it can start some dialogue and help me reach out to other rhabdo sufferers out there.
I am really interested to hear how you are recovering and what's going on with you since you left this post. Have your symptoms subsided? Has there been any recurrence of symptoms? Have you returned to training?
Best
Z
I have had Rhabdos all my life and finally have a diagnosis of a genetic disorder that is the cause(Carnitine palmitoyltransferase II deficiancy).
I have changed my diet and started taking carnitine supplements and feel much better now (no more new muscle pain). I am still recovering from my last episode in April and am not fully back yet strength wise. I am looking for other people who have had similar experiences and I hope we can help, support and motivate each other.