Restless Legs Syndrome Support Group

Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.

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Kailuagirl808 02/20/2018

OMG!!!! I started back on the Ropinirole because I stopped taking Gabapentin!!! My RLS is so severe it’s nerve wrecking

annettearizona 03/28/2018

Hope you and your dr can find something that works for you

Kailuagirl808 04/01/2018

Thanks so ,I had Annette. I was with a Pain Management doc for 12 years who put me on strong doses of morphine and gabapentin and didn’t want me off. Previous to these 12 years my RLS was severe.
Since I’ve gone off all the meds from my old doc, it’s all back severe again. I’ve started Topinirole at 5 mg. A day which is way too much and makes me feel weird. So I started on 2 mg. Twice a day. Most days I need another half, it all depends daily though.
Truly, I despise this medicine. I hate how it makes me terrible, gives me the heaviest head I can’t stand it!, still trying to find a medium here. God please help!!

ConnieRLS 04/03/2018

Hi - can I ask why you stopped the Gabapentin? My RLS is also severe, and I take 1200mgs of Gabapentin a day. I don’t think I’d make it without it. I recently had to miss about six days of it and was in so much pain during the night and exhausted by morning. That said, I’m not opposed to trying another med if it is more beneficial with less risks.

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