Restless Legs Syndrome Support Group

Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.

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prettyinpink1903 04/13/2018

Hi, all. I was diagnosed with RLS by a neurologist due to the sensation I get that I *MUST* flex my thigh muscles. However, this seems to happen mostly really early in the am, around 4-5am. I can't sleep once it gets going. Usually in the evening my thighs feel "anxious" for lack of a better term, like there's energy in them that can't escape, but the flexing thing doesn't happen until the morning. Once I flex them a thousand times (temporary relief that retreats quickly) my thighs just feel so tired all day.

This does not seem typical of RLS from what I'm reading because

1. Worse in the early AM

2. Not cramping, but an extreme need to flex the muscles

3. Muscle fatigue that lasts afterwards

None of these things seem to be in the literature. Any thoughts or help??

bulliray 05/18/2018

Mine is similar in that I needed to flex my muscles too but also had the other symptoms.

Supersue 09/12/2018

I don't have the creepy crawly thing that people talk about.
I feel like there's a tension under my skin.
it feels like I've had 10 cups of espresso coffee and can't sit or lie still. An all over body restlessness.

Rubyslipper 10/01/2018

I have had RLS for most of my adult life. Cramping is not usually a part of RLS but can be. It sounds like you have been correctly diagnosed. Every person with RLS is different--symptoms, what works, triggers, etc. It is a horrible disease.

FreedomNow123 10/16/2018

Sometimes I have to rest my leg on something high and cold. For some reason that helps...

tsmay13 11/12/2018

I have the same thing! 4:30 am without fail.. Tramadol is the only thing that stopped it but I can’t sleep when I take it. I’m wide awake. I’ve been dealing with this for at least a year. Took RLS prescriptions with no relief. Then one doctor visit he tells me to try 250mg over the counter magnesium. I have never had RLS again since that first pill! It was like a wonder drug. I sleep better, longer and deeper. I don’t have anxiety about waking up with it any more. Who would have believed an over the counter vitamin could cure me!

prettyinpink1903 11/12/2018

@tsmay13
I take magnesium but so far no relief. Taking 400mg mag Malate every day.

Were they certain it’s RLS? How similar were your symptoms to mine? Heavy tied legs, etc...

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