Restless Legs Syndrome Support Group
Restless Legs Syndrome (RLS) may be described as uncontrollable urges to move the limbs in order to stop uncomfortable, painful or odd sensations in the body, most commonly in the legs. Often sufferers think they are the only ones to be afflicted by this peculiar condition and are relieved when they find out that many others also suffer from it.
I am a member of another support group on Daily Strength and had no idea there was a support group for RLS.
I have it bad. I hate it. I am taking requip for it and it isn't really helping me all it does do is knock me out so I do get to sleep eventually. This is a horrible thing to have. I am not in a relationship at the moment, I drove my last boyfriend crazy. I am 58 and have been on some dating websites to look to meet someone, but I am really questioning why I would do that. Nobody can stand to be with me in the evening hours.
I recently went to John Hopkins Hospital to a RLS clinic. I was not at all pleased with what that doctor had to say. He told me he is basically running a detox center. People come to him that are on requip and he takes them off. I am basically addicted to it and he wants me to get off of it and give me nothing in the meantime. He said my RLS will be the worst it has ever been and I don't sleep for at least 5 nights. He won't give me anything during that time. Also, he told me many people are put on narcotics to help with the RLS. My daughter is flipping out over that possibility.
I am currently looking for a nevrologist in my area hoping that he can help me. I really hate this. I am grateful I found this support group.
THANKS FOR LISTENING LOL
Karen
I have it bad. I hate it. I am taking requip for it and it isn't really helping me all it does do is knock me out so I do get to sleep eventually. This is a horrible thing to have. I am not in a relationship at the moment, I drove my last boyfriend crazy. I am 58 and have been on some dating websites to look to meet someone, but I am really questioning why I would do that. Nobody can stand to be with me in the evening hours.
I recently went to John Hopkins Hospital to a RLS clinic. I was not at all pleased with what that doctor had to say. He told me he is basically running a detox center. People come to him that are on requip and he takes them off. I am basically addicted to it and he wants me to get off of it and give me nothing in the meantime. He said my RLS will be the worst it has ever been and I don't sleep for at least 5 nights. He won't give me anything during that time. Also, he told me many people are put on narcotics to help with the RLS. My daughter is flipping out over that possibility.
I am currently looking for a nevrologist in my area hoping that he can help me. I really hate this. I am grateful I found this support group.
THANKS FOR LISTENING LOL
Karen
Seriously, good luck with a new neurologist. Sometimes it takes a while to get one that is a good fit for us.