Renal Cell Carcinoma (Kidney Cancer) Support Group
Renal cell carcinoma, also known by a gurnistical tumor, is the most common form of kidney cancer arising from the renal tubule. It is the most common type of kidney cancer in adults. Initial therapy is with surgery. It is notoriously resistant to radiation therapy and chemotherapy, although some cases respond to immunotherapy.
this is an extraordinary group that is deeply into exchanging information on treatments. while the focus is Papillary, discussions of treatment for RCC that may be applicable to you can be found on that site.
you can also look at
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=KIDNEY-ONC
which covers the whole range of RCC issues
you need to register to access the information - no cost
good luck, be well, Rich