Hello, I feel your pain. In January 2016 what I thought was a kidney stone turned out to be kidney cancer. one month later they took my right kidney. SO for the next two years they did every thing they could to protect the left kidney. Test after test to make sure it was ok. I lost my insurance for about a year and when I got it back the first thing I did was have every test possible to make sure my left kidney was ok. And it was. But having some back problems, the did a MRI and it showed some stuff on my hip. So they followed up with CT scans and gave me two years because the cancer had come back in the bones. All that watching the kidney and no one ever said a word that it could come back in my bones. Now they tell me nothing much to do but wait it out. So I find myself trying to set things up so my wife will be ok. And of course trying to keep a good attitude, I have decided to work on a bucket list so I can spend what time I have left with my wife in a good way ...After reading your story, I pray that everything works out for you. I know that this can be hard but I refuse to let it get me down. I hope you can find the same peace.

I passed a physical on Feb 1st. Feb 2nd started pissing blood, ended up in ER and had CT scan to be told had stage 4 renal cancer. Feb 8th had right kidney removed. But the spread to the lungs is being trated wirh Canometyx 60mg. Have all of the symptoms of the possible side effects, but I am more worried about the prognosis. 8 percent survival rate and I have small children. Wife is really awesome but can not sleep most nights due to anxiety and worry.

Husband has stage 4 has spread to back tail bone and hip from there to lower lobe both lungs then to brain 3 masses found only because he was having systems like a stroke but turned out to be where the mass was located. We have since had gamma surgery on the masses in the brain and radiation for the bones and are on 2 round of opdivo and Yervoy side effects were being mostly tired and constipation, It has been only 2 months since the news. Don't read the survival rate everyone is different, Take one day at a time, let your wife know if she needs to talk I understand. Good luck to you!

Hello just diagnosed and I know the feeling it’s really hard i am facing surgery coming up in August not feeling well

Im new here had a partial nephrectomy april 27th roboticly. Dr said he got it all. I wa stage 1 grade 2. I recovered nicely. Except now im feeling very tired at times and now also getting stomach aches and nausea wondering if anyone else is feeling same

I understand completely open, what you are saying, it is so scary having to wait and not knowing what you are going to be facing. I went through that. My surgery was in April 2017, it will heal and just take it easy and let someone wait on you for that time. I know that it's not easy to deal with this, hard to find someone you can let loose on and not be afraid they will walk away. Just know that your family is there. I'm thinking of you and your family.

Sweetie,

NEVER EVER lose faith.
Your stronger than your giving yourself credit for.... Feeling not in control or hopeless is never the answer.

The Enemy only attacks because your valuable to God.
Thieves don't break into empty houses..YOUR Priceless!!!!!

Hugs&Prayers
Becca

Hi,
I'm new to this group.
In November of 2013, I felt a lump on my left side just below the rib cage.
My doctor sent me in for a CT scan. I still remember that day as if it were yesterday. the tech had just finished the scan and I was getting changed back into my clothes when the radiologist knocked on the door to the room. he came in and told me that there was a large tumor found on my left kidney and that they would like to admit me to the hospital and have me meet with a surgical urologist that night.
At this point I was scared out of my mind.
I was indeed admitted to the hospital and met with the surgeon and a day and a half later I had a left radical nephrectomy to remove the tumor, kidney and the uritor.
After a week or so after the surgery I was back at home and had received a phone call from the urologist with pathology results stating that this was a rare form of renal cell carcinoma called chromophobe.
He assured me that he and his team believed that they were able to remove all of the cancer during surgery and that i would not need to have any further treatment.
It has now been 4 1/2 years later. I just had a routine CT scan and had an area on the lymph node come back as looking highly suspicious.
I was sent in for a PET scan and it was confirmed that there is cancer on the lymph node as well as there being multiple cancerous nodules in the left upper kidney bed where the surgery was done.
We have ned with a medical oncologist and have had further blood word and testing done and will be meeting with a surgical oncologist in the next week or two to determine if surgery is an option again or not.
my family and I are trying to stay positive. We have a huge support system and have been praying about what the right direction is for my treatment.

Sorry that this was kind of a lengthy post, but I hope that we can help to lift eachother up and support eachother through each of our trials.

Blessings to all,
Tracie