Hi Hon,

if you happen to hear anything about your question i would appreciate if you would let me know.. Tim had a bone scan done yesterday and it is suspected that he may have some mets in the spine area.. This is all so very scary and i hope the scan comes out negative, all i know is that Tim's is in so much pain in his back, shoulders, and knee's.. I hope all is going well with you two and i'm sorry i don't have some answers for you, but i feel we are in the same situation..

Love,
Becca

Hi my mother has Mrrc in her spine. It caused and is causing her a grat deal of pain. It takes a lot of pain meds to alliviate it. If yhe doctors caught this met early you have some options. I would seriously investigate whether you want them to do radiation on his spine as there is the danger of destroying any goog spinal bone that is in the area they want to radiate.

Rcc mets are sometimes very resistant to radiation and/or chemotherapy. my mom's mets were in the c6,7 to L1 to 4 area of the spine. After raditation, she was unable to hold her head up and it seemed as though the cancer progressed faster that ever because she was made so waek from the radiation.

There are some very knowledgeable people on thi sight, keep checking and asking. Also try the Brain and CNS tumor group with your question.

I know a woman who lives across from me who is trying stewm cell replacement therapy, it seems to be working well for her. Where is your huband's mets on his and the rest of his body?
write back soon

Love brother Anthony

After discussion with the doctor, my husband will have radiation to the spine. Tumor is near the T7 vertebra, and the doctor said if radiation is not done, there is a risk of paralysis.

I too, am concerned that the radiation will weaken him.

Karen

Dear Karen, we will just pray that the radiation will work. I surely can understand your worry about weakness. But the worry can destroy you! One day at a time. Please keep us posted as to how he is doing. Prayers for you both!
Wanda

my husbands rcc had mastated to his spine and ribs. he was in terrible pain. they radiated one rib that was causing him the most pain. it wont stop the cancer but it does help for the pain. his spread and they did a second round of radiation to his spine that took away a good amount of the pain, the rest being able to be controled by pain meds but unfortunately they waited too long and he was only without pain for about a week before he passed

Hi

about the one biggest sympton is severe pain that does not want to subside. Exactly where on the spine is it?

The area the tumor is in is the T7 vertebrae, middle of the back area. We are waiting to see if the pain has decreased at all with radiation. Really can't determine that until a few weeks after the radiation ends, as the pain increases during the course of radiation, and for about a week after.

I am new here and I don't know a whole lot. My dad's RCC has met. to the base of his spine near the cushiony part. He is currently undergoing 5 rounds of the Cyber Knife. I don't know if this is an option for your situation or not.

My dad has RCC in the spine, ribs, and hips. They did radiation and it helped with his mobility but as far as pain they put him on a steroid and pain medicne. when he was doing radiation he would sometimes cough up blood which when talked to the doctor it was from the radiation to the spine hitting the lungs causing it.

My hubby finished the radiation to the spine a few weeks back. Since then, his mobility has become more difficult, and pain seems to have increased. He sees the doctor again next week. Maybe we will get more information on how to manage.

Hi, My fiance has had rcc since 1/10, in june we found out it matastis to his spine and brain. Radiation got the spine, not the brain. I can tell you that his tumor in the L2 covered 50% of his spinal cord area and 50% of his L2...20 treatments of radiation and just got MRI back and spine is all CLEAR!!...Now his L2 can start to grow new cells for bone.He was having server back pain...1 wk after treatment started pain was gone...still no pain....It is very scary and not knowing is the worst. Symptoms for him great back pain that wasnt relieved. I hope this helps . Prayers and thoughts to you.

Hi. I was diagnosed in 9/10 with metatstasis to the L1 vertebra. The week before my nephrectomy I had a high dose radiation treatment--IMRT (Intensity Modulated Radiation Therapy) which treats the tumor but not the surrounding tissue. Although side effects are rare, I had extreme nausea for several days. But the back pain I was experiencing is gone. We'll see later when I repeat my scans whether the therapy was successful in getting rid of the tumor altogether. I hope so. Mets to the spine can be very painful; and they are dangerous, of course. I would look into IMRT to find out whether this type of radiation treatment could be helpful in your situation. I hope this helps. My best wishes to you.