Hello everyone, I am a new member who-finally was correctly diagnosised with RSD-atleast all the symptoms fit to a tee! My history is long and sad of doctors, tests, and fustration as it seems a lot of yours are. Here's my biggest fustration that I really need help with, my husband and I have a beautiful retreat cabin about 600 miles away from our home, and it is a place I love to visit but have been unable to for a year and a half now. Why? Riding in a car causes extreme pain, and a huge flair up that can incompacitate me for weeks after. We have done some minor testing and it seems I am able to deal with the situation for about maximum 1 and half hours in a car with rest breaks about every 45 minutes. Anything over that will send me into a flair up that lasts days or weeks to calm down. My RSD is not under control in any way and feels like it is deterating quickly. Started in left wrist where damage is went up to shoulder, then neck ... right hand starting to show strong signs of rsd as well. I was diagnosised in July 2008 with periheral neuropathy in both upper extemities and was told by doctor for wrist that it was of no concern. Blood tests showed no other reason for the neuropathy and right hand was not hurting then...should have listened to doctor who did neuropathy tests and gotten a new doctor! Surgery in November 2008 kicked nerves into RSD. Does anyone else have this problem and were you able to find a way to overcome it? Right now my hubby say no way is he riding with me that far...sometimes I want to go anyway. He says I must find a way to make it better first. Last time I rode for 2 1/2 hours to mother in laws, on the way back went into flair up that was so severe I bit my tounge tring to still my cries, then had to hide the blood to not freak out husband/child more than they already were. Help please!
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