Reflex Sympathetic Dystrophy Support Group
Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a chronic condition characterized by severe pain following injury to bone and soft tissue. The most common symptom is burning pain. The patient may also experience muscle spasms, local swelling, increased sweating, softening of bones, joint tenderness or stiffness, restricted or...
Hi, I was dx with RSD this past summer after I had hip surgery. I also had broken my big toe on the same leg a little before that surgery so we're not sure what really caused the RSD. Anyhow, I've been getting chills on and off - is that a symptom? They talk about sweating.. Is that at the site or can it be anywhere, because my head is sweating and then I get the chills.
I've had several lumbar sympathetic injections in an effort to catch this thing before it gets worse but it has already spread to my opposite leg. How many of you had fibromyalgia before you had crps/rsd? When the fibro flares does the rsd flare and vice versa? It seems to really be doing a number on me.
Does anyone use a tens unit? I tried that and it helped but omg, when I tried to take the patches off, it hurt so bad! Is there anything I can do about that??
If anyone can give me any feedback/hints, I would greatly appreciate it.
Oh, and have any of you been able to get social security disability as a result of the rsd?
bluesydeb
thanks so much,
I've had several lumbar sympathetic injections in an effort to catch this thing before it gets worse but it has already spread to my opposite leg. How many of you had fibromyalgia before you had crps/rsd? When the fibro flares does the rsd flare and vice versa? It seems to really be doing a number on me.
Does anyone use a tens unit? I tried that and it helped but omg, when I tried to take the patches off, it hurt so bad! Is there anything I can do about that??
If anyone can give me any feedback/hints, I would greatly appreciate it.
Oh, and have any of you been able to get social security disability as a result of the rsd?
bluesydeb
thanks so much,
I'm in a bad way today with RSD, and was trying to lurk around and distract myself from the pain...typings bad today- anyway YES you can get Social Security as a result of the rsd, I did two years ago, took first the application then won on the appeal.
I sweat a lot, especially around the head, Dr. says part RSD, part PAIN and part Pain Meds equals Lots and Lots of sweating- yuck. Watch out for infected sweat glands if your sweating so much. I get them under arm, breasts, and upper thighs, all places that don't dry well and stay continually wet when you sweat a lot.
gentle hugs
MM
I was diagnosed with fibromyalgia and CFS before I hurt my foot and developed RSD. I did get SSD. I never used a TENS unit. Did have injections, but they didn't help. Also had a spinal cord stimulator trial which didn't help much either, so I didn't get the permanent implant. I used pain meds for a while particularly after my injury and subsequent surgeries, but after a while they didn't work very well and I didn't like the way they made me feel. Now I just use a cream my pain doctor has compounded for me with several types of pain meds in it. I also have sweating, but I think mine is from my fatigue and also I have heard that sweating can be your bodies reaction to pain.
Hang in there and take care of yourself!
Hugs,
dwin