Pulmonary Hypertension Support Group
Pulmonary hypertension (PH) is an increase in blood pressure in the pulmonary artery or lung vasculature, leading to shortness of breath, dizziness, fainting, and other symptoms, all of which are exacerbated by exertion. Depending on the cause, pulmonary hypertension can be a severe disease with a markedly decreased exercise tolerance and right-sided heart failure.
I was recently diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH) after suffering multiple pulmonary embolism caused by a Factor 5 leiden deficiency. My doctor has recommended a pulmonary endodartectomy as my only treatment option.If I choose not to have this procedure done,I was given a 10% chance of surviving the next 5 years. This completely blindsided me and I can't wrap my head around the diagnosis,let alone make a decision about surgery. Has anyone else out there received a similar diagnosis or had this procedure done? I am absolutely frantic and desperate for some answers. Please help me if you can!!!
There are people there who have had the procedure.
I cannot recommend this procedure highly enough. My pressures dropped from over 50 to 21 (20 is normal and so I am close to being totally cured). I am no longer on Oxygen, I walk the dogs again, I swim up to 20 lengths three times a week, I work full time, my skin is healthy - I am a normal well person again and it is fantastic!
Please consider having this done - it can and will change your life and lets face it it is worth the risk.