Pulmonary Fibrosis Support Group
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothelium, basement membrane, perivascular and perilymphatic tissues. The term DPLD is used to distinguish these diseases from obstructive airways diseases. Most types of DPLD involve fibrosis, but...
Lori-Colomer
I have been felling awful. Tired I want to sleep all the time but I still feel tired. I get out of breath with any activity. If I laugh I cough, if I talk to much I cough. Lately I cough all the time. A dry cough. The oxygen level in my blood is normal. CT scan was normal. The breathing test they did in the Dr's office said that I had restrictive problems not obstructive. The Dr is sending me to a pulmonologist. The Dr said maybe I have Pulmonary Fibrosis. Can anyone tell me how they where diagnosed. If my symptoms sounds like yours. Please any help or info will be appreciated. Thank you.
brunob
my diagnosis started the same way, with a cough that wouldn't go away. I am sorry you had to find us this way but welcome to the site. I am sure you will find alot of support and info here. I have alot of the same symptoms you do so if you want to talk more about it I'm here.
deleted_user
Hi Lori, I too have the same problems as you do. I had a flare up in May and was told that I have Pulmonary Fibrosis. In July I was told that I also have emphysema. The first four months I thought I was actually dying, LOL. Always tired and out of breath. In August I started walking so I could strengthen my lungs. Walking actually worked. I'm not as tired as I used to be. I am on oxygen when I exert myself. I try to walk at least a mile a few times a week. It was slow starting but now it's a little better. One step at a time, then two, then three, etc. I don't need oxygen any more when I make the bed. I am not coughing as much, but I can't get excited over anything, or talk too much. When I'm talking too much, I have to shut up for a while until I get my breath back. LOL. Take care. Linda
deleted_user
Hi Lori..I too have had all of those symptoms. Still do to some extent. If you haven't gone already, be prepared for an extensive workup. I also have an autoimmune disease make sure you ask about that, see a rheumatologist possibly too. CT scan normal is good (probably minimal scarring). I have a type of restrictive airway disease called interstitial pneumonitis. Inhalers are useless. Will need steroids. Scary at first but really a life saver. I'm only "moderate" on the severity scale and I have been able to increase my activity level so that I can walk a "tread mile" at an incline, stationary bike 10.8 miles, swim a mile and do 30 min of weight training...all in one day if I want. I started out like you. Am NOT on any oxygen at anytime. Be aware that this can change on a dime but not everyone with restrictive airway issues is house bound. I still also work full time...there is hope!!! Hang in there... let me know if I can help you with anything.
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