Pulmonary Fibrosis Support Group
Diffuse parenchymal lung disease (DPLD), also known as interstitial lung disease, refers to a group of lung diseases, affecting the alveolar epithelium, pulmonary capillary endothelium, basement membrane, perivascular and perilymphatic tissues. The term DPLD is used to distinguish these diseases from obstructive airways diseases. Most types of DPLD involve fibrosis, but...
TeamDS
Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
I ordered the book from them when I was first diagnosed this spring. I haven't read it to my 5 year old daughter yet... It made me cry when I read it myself. Don't know why, just over emotional I guess. But anyway- I figure I'll wait a while, until it stops bothering me so much. Don't want to upset her for no reason! It is a great way to talk to kids about it, though, I agree! Thanks for posting this for others :D
deleted_user
I got this for my 4yr old son and he really enjoyed it. I think he liked the idea that there are other mom's that use things like I do, rollator, wheelchair, cane. I was so happy I got it.
deleted_user
I just called the MS society in Canada to see if I can this book. I am crossing my fingers that I can get it in Canada:) It sounds like a great way to talk to my kids about MS.
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